I was watching the news this morning and low and behold snow is coming...does that mean it's a snow day?
To update what's going on here in our break from the outside world, Ivey is sick. We came here with seizures. Got here. Not one single seizure to be recorded during the video EEG, which is still running, and landed with an infection. Go figure. She loves to keep everyone on their toes. My toes, however, are tired. She has been working us all.
The past two nights during the deep morning witching hours, have been long and hard. My sweet pea has been spiking a terrible fever. She is miserable. Blood work is back indicating that she is indeed fighting an infection. Now we are waiting on other tests to try and figure out exactly what she is fighting. Her chest x-ray did look good. They have started her on a pretty strong antibiotic. Unfortunately, her little bottom is already blistering where it makes her poop so much. That in itself is painful for her. For now that is about all I know.
Oh almost forgot. Her breathing is not as labored as it has been for the past two days. She is on her normal breathing treatments with a little cpt.
As always, the nurses and staff, and Ivey's doctors are incredible. Ivey's sweet day nurses have worked hard and her night nurses have been super. Right now a nursing student is sitting in the room with her so that I could run down to the lobby, get coffee, something to eat and go look at the sunshine for the first time all week. I have left the room here and there to wash a load of laundry, wander through the gift shop for a break, and down to the caferteria, but this is so nice being able to sit down to a different brighter view for a moment. I told her she was my early birthday present. I don't think I could ask for any thing better, except for the obvious.
Oh, and right now I am not sure when Ivey/we will come home. Definately not today.
Thank you all for thinking about Ivey.
To update what's going on here in our break from the outside world, Ivey is sick. We came here with seizures. Got here. Not one single seizure to be recorded during the video EEG, which is still running, and landed with an infection. Go figure. She loves to keep everyone on their toes. My toes, however, are tired. She has been working us all.
The past two nights during the deep morning witching hours, have been long and hard. My sweet pea has been spiking a terrible fever. She is miserable. Blood work is back indicating that she is indeed fighting an infection. Now we are waiting on other tests to try and figure out exactly what she is fighting. Her chest x-ray did look good. They have started her on a pretty strong antibiotic. Unfortunately, her little bottom is already blistering where it makes her poop so much. That in itself is painful for her. For now that is about all I know.
Oh almost forgot. Her breathing is not as labored as it has been for the past two days. She is on her normal breathing treatments with a little cpt.
As always, the nurses and staff, and Ivey's doctors are incredible. Ivey's sweet day nurses have worked hard and her night nurses have been super. Right now a nursing student is sitting in the room with her so that I could run down to the lobby, get coffee, something to eat and go look at the sunshine for the first time all week. I have left the room here and there to wash a load of laundry, wander through the gift shop for a break, and down to the caferteria, but this is so nice being able to sit down to a different brighter view for a moment. I told her she was my early birthday present. I don't think I could ask for any thing better, except for the obvious.
Oh, and right now I am not sure when Ivey/we will come home. Definately not today.
Thank you all for thinking about Ivey.
Comments
It is an honor to know you
God Bless you and your family
I will continue to pray for you all