I am wife and mom to one husband and two sons doing typical wife and mom things. I am also mom to a teen daughter who happens to have a few labels that separate her into the world of disabilities, labels such as medically complex, complex communicator, and deafblind. She also has that thing called an IEP, lots of labels there. So, I navigate, advocate and negotiate on little sleep and lots of coffee. To help me do this, I write. Some call my writing transparent, some say, 'I thought it was just me', others call it 'too much'. Me? I call it real. Writing helps me put the experiences on a shelf so there is more space for the people who are my world. No matter the thought, no matter the humor, no matter the tears, it is all done for the love of Ivey. Always.
Gwen
Confessions from the mind of this sleep deprived mom navigating the world of complex medical needs, deafblindness, and special education. And y'all, it may not always be pretty, but it's real, and it's always for the love of Ivey.
Subscribe to:
Posts (Atom)
Sibling Secret Sauce
Siblings of kiddos with disabilities are amazing humans walking amongst us. They live a life, most often, in the shadows of their sibling w...
-
Thank you all so much for taking time to share this milestone with our family. It is so great that you all are a part of our lives just as I...
-
So, I did it. At five thirty Wednesday morning, I was up leaning over a crib singing Happy Birthday to a sleeping baby who had no idea that ...
No comments:
Post a Comment