Confessions from the mind of this sleep deprived mom navigating the world of complex medical needs, deafblindness, and special education. And y'all, it may not always be pretty, but it's real, and it's always for the love of Ivey.
she sure is stirring up trouble around here. (At the bottom of this post is a new Ivey video. )
I can't quite figure her out. Weeks seem to creep by with her creeping along at a snail's pace. She may do little things gradually, but with alot of work. Truly, we have learned to appreciate the little things in life - the things we take for granted - the things that most often go unnoticed - the things that the rest of us can just do. Ivey has taught us to slow down and we have no choice but to do so.
Like I said, time can be like a doldrum at times and then there is the 'Click'. She all of a sudden gets it. The past couple of weeks have been full of clicks. Last week she started to get the meaning and correlation of certain signs that we have been teaching her. After months of repitition, it clicked. Last night, after months and months of practicing certain skills in PT another little milestone clicked. So Rebecca if you are still checking in, she finally got it. Ivey rolled…
Ivey loves her trach capped off. She is doing great, chatting up a storm!
Here are two videos during speech this morning. Just watch her go. As you can see, she is smiling, talking, playing and learning a little sign language all at once. (You can even see her shoot the cap off of her trach like a bullet in one of the videos. It is lethal if you are in front of it!)
If you want, you can mute the music at the very very bottom of the webpage. Just hit the stop button on the player.
Please go to the web site below and vote ATLANTA (Children's Healthcare of Atlanta at Hughes Spalding) to get a new hospital playroom from Colgate.
It will only take a few seconds of time. Click on the website below, then click on Atlanta. It will benefit many of our children who spend their time at the hospital. Help to make a Home away from Home.
Let's win this one for the kids, so pass this along and VOTE - everyday if you like.