When Ivey was a baby, I literally had drawers and spaces in her closet labeled, everything had a space, a place. One special friend loved showing off Ivey's closet to newbies coming by for a visit. This level of organization mystified my friend. Secretly, I wanted to go back to haphazardness. Justifying why I did this is simple. At the time, I had friends helping me with my laundry, as were my mom and some night nurses. With so many people, I found it more efficient, for all of us, to label everything. No one had to search or guess where things belonged. This approach to find order has only amplified with time. I have come to accept that being Ivey's mom has brought out a controlling aspect in my personality. For the record, I have always found peace in order and organization. It could be described as controlling, maybe. Ivey ramped up my need for order. On her hard days, or in times leading up to what I know will be hard, my need for order raises it’s merciless head.
I used to say, "Life with Ivey is a rollercoaster ride." Scratch that. It's nosediving in an airplane where she pulls up on the controls in the last second just before crashing. We have updated information on Ivey's hearing. I have been in a state of joy and confusion. Results from the November MRI and ABR are in. To recap, the MRI was looking for any structural quirks to the temporal regions in the skull/brain directed to hearing and the ABR was to see if there was any further changes to Ivey's hearing. The MRI showed no new changes to the regions of the skull/brain, all is as it has been. Still microcephalic, agenesis to the corpus callosum, and structural deformities to small bones that help conduct hearing. And, everything still looks good from the cranial vault many years ago. As for the ABR, there is good news. It seems that the November ABR was consistent with past ABR's, with the exception of the August ABR. This means, Ivey's hearin