Cake before.
Cake after.
The end to a perfect birthday - A living room slumber party with her brothers -
Gooey Sticky Birthday Cake.
Confessions from the mind of this sleep deprived mom navigating the world of complex medical needs, deafblindness, and special education. And y'all, it may not always be pretty, but it's real, and it's always for the love of Ivey.
I have officially had a case of writer's block. It's crazy. I sit down to update Ivey and can't think of a thing to write about. This has been going on for a couple of months now. Really, I never thought I would run out things to jabber about. Maybe it is not from the lack of things going on, but sifting through the surplus of craziness. I have even wanted to post some pictures, but that means downloading them- ugg. So, its mid-morning and Ivey's Wednesday OT session was switched, so I have a few moments. Of course I could fold the laundry that is piled up, even iron it, but who wants to do that? And at the beginning of the week we had two rooms painted, one being Ivey's room, because we are switching her to a different bedroom. Now if I were really motivated, I would start moving her furniture, clothes, medical supplies and toys....or sweep up the dust from places the painters had to sand. Instead, I am sitting here doodling through emails and now this. If you are wondering where Ivey is, she is sitting here next to me playing with her musical flowers and eating.
Last Thursday at the boys tennis lesson one of their friends was intrigued that Ivey did not have eyes, remember, she has not been wearing them in quite a while, months actually. Four year olds are the cutest things; she asked all kind of questions and just loooved on Ivey. Then she picked a dandelion to make a wish…and she wished for 'the baby' to have eyes. Those seeds just few in the wind from that Dandelion Wish.
Friday morning I had the itch to look at Ivey with her beautiful green eyes. And guess what?? She left them in. Of course, she has tried a few times to take them out, but only a few times. Now it is Wednesday and I am sitting here looking at a green eyed girl. Guess that sweet Dandelion wish came true.
If this doesn't work long term, I have a new plan. I think we'll have an "Ivey's Eyes Weekend Marathon". We'll have to come up with a cuter name for it though. Literally, have anyone we know signup for a time, whether it's five minutes or an hour, and simply sit and play with her or hold her while she sleeps. I really think that she would leave them alone if we could just 'desensitize' her from them. Maybe if we could entertain and distract her for an entire weekend (Friday – Sunday) she would leave them alone. What do you think? Anybody up for playing with Ivey??
So I'll let you know in the next few days how it goes. In the meantime, we may have pictures of a green eyed girl on her third birthday….
Remember, Saturday is the big day. Ivey will be three….3….. Ha
Well, more on that later, the feeding pump just went off and Ivey and I have a list of things to do today.
Between a six year olds birthday party, homework, sinus infections and trips away from home, there has been little computer time. So I wanted to take second a let you in on a couple of small things learned over the past couple of weeks.
One, Ivey has decided she LOVES to give kisses. And don't think you'll get a normal kiss. Ooohhh nooo. It's a nice slobbery kiss with a giggle from her. That's okay. They are some of the best kisses ever (even if we all come away with a little drool).
Two, Matt and I took a trip. And not just a one night trip, but a real five day away trip. It was the first in a long time. Honestly, one that we weren't sure if we would ever be able to take (alone) again. Well, we did and it was wonderful. So, for all of you with kids and especially those of you with special needs children that think you can never leave, you must go. Whether you think they can or not, there are others who are willing to watch the little ones and do just as well, even though it is hard to imagine, as we parents do. And guess what? Our kids survived. The world kept right on spinning. And we had a great time. And so did our kids.
Remember, couples with special needs children on average have a higher percentage rate of divorce. That special time is very important. So thanks mom and dad for taking time to stay here so that we could go. And thanks to our friends who made for a very special and FUN Trip!!
Also, can you believe that Ivey will be three in a couple of weeks? My how times have changed.
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