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Showing posts from June, 2006
Thanks so much for everyone's continued care and concern for Ivey and our family. As some of you may know, Ivey is now traveling to Scottish Rite and other specialty doctors. I thought I would share with you our newest discoveries and confirmations about Ivey's condition. Ivey does have Chromosome 21q-partial deletion syndrome. This syndrome is known to involve mental, motor and growth retardation. We know some concrete problems that Ivey faces; however, we will only be able to gauge her mental and motor development over time. Basically, we can identify more of her physical issues for the time being. The Craniofacial Clinic at Scottish Rite thinks we will be able to repair Ivey's lip between 3 and 5 months of age and her palate somewhere between 6 and 9 months of age. In the meantime, we are taping Ivey's cleft lip with steri strips to prepare her for surgery. She does have anophthalmia- which is the cause of her blindness. This means the tissue for her eyes did not fo…