A simple sentence. No one said it to me in the beginning, but boy did that tube cause a lot of chaos. The NG tube graduated to the G-tube which morphed to a GJ- tube…. A brief history of Ivey's feeding tubes: *The NG tube was in place the first time I ever saw my daughter in the NICU. My only memory of her without a feeding tube is them placing her in my arms immediately following her birth. *The G-tube, well, that is a story within itself. That decision did not come lightly. Another hole in her. Another decision on our plate, but not really on our plate, it was apparent it was a medical necessity for her survival. Literally to give her a chance to live. A permanent decision. A 5am panic attack in the Scottish Rite elevator that happened to coincide with Dr. Meyers arriving at the hospital at the same time as me.... Our intersection in the elevator set the stage for the years to follow. From that point on, he knew I was a little nuts and a lot...
Confessions from the mind of this sleep deprived mom navigating the world of complex medical needs, deafblindness, and special education. And y'all, it may not always be pretty, but it's real, and it's always for the love of Ivey.


Comments
I came across your beautiful blog and wanted to say hi. I have 2 sons born with cleft lip and palate. Your little Ivey is so beautiful and I love her name. You guys are such a beautiful family. And I love the music on your blog!
She is so beautiful!!! And, look at her up on all fours and crawling a bit!!! My heart is rejoicing for her!! She looks so happy in the video! Made me want to reach through the computer screen and tickle her sweet tummy, too!!
Your a sweet mama, Gwen!
I was loving the video of her working so HARD, go girl!! :)
I know what you mean, we take SO many movements for granted...I am so proud of her, pretty girly in pink!
We set NEW milestones when we have a special little one, and I think we do a way bigger dance when they accomplish it!!! :)
Dancing for you...and Ivey of course!
Liz