Ivey did finally make it up to the PICU after a couple of hours post-op. She has struggled throughout the afternoon. Ivey is having trouble maintaining her her heart rate and blood pressure. Along with that, they are monitoring her CO2 levels. If she does not improve, there is a possibility of intubating her. She has lost a good unit of blood and may require another transfusion. Blood did asperate into her lungs which is hindering her breathing as well. She is on an antibiotic to prevent infection so hopefully this will hold off pneumonia. To top it off her seizures have begun. Both pain medications and seizure medications suppress the respiratory system, so there is a balancing act taking place. Nights tend to be long. Cross your fingers and pray for a good night.
A simple sentence. No one said it to me in the beginning, but boy did that tube cause a lot of chaos. The NG tube graduated to the G-tube which morphed to a GJ- tube…. A brief history of Ivey's feeding tubes: *The NG tube was in place the first time I ever saw my daughter in the NICU. My only memory of her without a feeding tube is them placing her in my arms immediately following her birth. *The G-tube, well, that is a story within itself. That decision did not come lightly. Another hole in her. Another decision on our plate, but not really on our plate, it was apparent it was a medical necessity for her survival. Literally to give her a chance to live. A permanent decision. A 5am panic attack in the Scottish Rite elevator that happened to coincide with Dr. Meyers arriving at the hospital at the same time as me.... Our intersection in the elevator set the stage for the years to follow. From that point on, he knew I was a little nuts and a lot...
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