Skip to main content

One Week In: Monday Night Update

Ivey seems to have made the necessary turn over the past 24 hours.  She is managing pain without the morphine, which is necessary for coming home.  There is still a regimen of pain medication, but that can be monitored on the home front.  All of which means we are one step closer to coming home.  Pain has been Ivey's biggest obstacle.

Ivey's swelling is down immensely, still swollen, but nothing comparable to the past week and bruising is fading.

Seizures still hit periodically, but they tend to go hand-in-hand with pain.  Another thing that is normally monitored on the home front too.

This afternoon her IV went and was removed.  She has been a pin cushion over the past week, with lines from every extremity at some point, so everyone was in agreement to go without an IV and switch all meds to her feeding tube.  She is up to full feeds, so IV fluids are not needed any longer.

It is a noticeable that her upper jaw is moving forward.  With it her little nose is getting "perkier" and her lips fuller.

We can all breathe easier for now.  It's hard to fathom that a week ago she plummeted and now she is signing for "The Wheels on the Bus" and "Itsy Bitsy Spider".   Once again she has been a warrior.

Hopefully we are closer to going home.

G.




Comments

Shere’ Moore said…
Beautiful Girl!! So thankful that things are improving!

Popular posts from this blog

And Sometimes Feeding Your Kiddo Looks Like This...

A simple sentence. No one said it to me in the beginning, but boy did that tube cause a lot of chaos. The NG tube graduated to the G-tube which morphed to a GJ- tube…. A brief history of Ivey's feeding tubes: *The NG tube was in place the first time I ever saw my daughter in the NICU.  My only memory of her without a feeding tube is them placing her in my arms immediately following her birth. *The G-tube, well, that is a story within itself.  That decision did not come lightly.  Another hole in her.  Another decision on our plate, but not really on our plate, it was apparent it was a medical necessity for her survival.  Literally to give her a chance to live.  A permanent decision.  A 5am panic attack in the Scottish Rite elevator that happened to coincide with Dr. Meyers arriving at the hospital at the same time as me.... Our intersection in the elevator set the stage for the years to follow. From that point on, he knew I was a little nuts and a lot...

BEAUTIFUL GREEN EYES........

Sibling Secret Sauce

Siblings of kiddos with disabilities are amazing humans walking amongst us. They live a life, most often, in the shadows of their sibling who simply needs "more". More time. More direct attention. More of more. We have now come to a fork in our road. Our boys are young men, and, our daughter is a young lady. I'll be honest, I was uncertain what life would look like once the boys left this home, once they had their own time, in their own personal sunshine. We found out quickly once Knox left for college his freshman year what that would look like. And then, when Walker left, we knew what life would feel like in their absence. There was too much space. Ivey felt it. We get many compliments about the relationship the boys and Ivey have with one another. Hints here and there that, maybe, Matt and I had some secret recipe to parenting a household with a child that is very medically complex and a very complex communicator. This is what I can tell you - there is no re...