A simple sentence. No one said it to me in the beginning, but boy did that tube cause a lot of chaos. The NG tube graduated to the G-tube which morphed to a GJ- tube…. A brief history of Ivey's feeding tubes: *The NG tube was in place the first time I ever saw my daughter in the NICU. My only memory of her without a feeding tube is them placing her in my arms immediately following her birth. *The G-tube, well, that is a story within itself. That decision did not come lightly. Another hole in her. Another decision on our plate, but not really on our plate, it was apparent it was a medical necessity for her survival. Literally to give her a chance to live. A permanent decision. A 5am panic attack in the Scottish Rite elevator that happened to coincide with Dr. Meyers arriving at the hospital at the same time as me.... Our intersection in the elevator set the stage for the years to follow. From that point on, he knew I was a little nuts and a lot...
Confessions from the mind of this sleep deprived mom navigating the world of complex medical needs, deafblindness, and special education. And y'all, it may not always be pretty, but it's real, and it's always for the love of Ivey.

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Sending love and healing prayers her way and, I know you think I make this crap up, the similarities in the 2 of us and our girls but seriously, are those Robeez, as in pink leather with soft beige fur in the inside, cuz you know what I am going to say, don't you?
When we bought them, 3 years ago, no joke, Mark said, "30 dollars for little baby boots." Here we are, this long after, and she still wears them. Fits her teeny tiny feet that don't grow and since she doesn't walk well, they look fantastic!
I'm looking into getting a wheelchair/stroller for Orion... What kind is Ivey's?