It has all been so hard here lately, and on such a different level than the past. It's the parts of life that were neglected due to the demands of such a special needs child. What now? How do we bridge this? Marriage is so different. Somedays we dont even know how it should be. How after all this time have things gone so pear shaped? She's fine, but I feel so lost here lately. And, she falls on such a far sided spectrum of the special need scale. I find myself getting frustrated sometimes with parents with special needs children who can walk, talk -eat.. It's so lonely even amongst the special ones....
So my kindred spirit across the states has said what I've been searching for, in many ways. So if you are a special needs parent you might really want to read her post. I have several times.
Little Wonders (just click)
Confessions from the mind of this sleep deprived mom navigating the world of complex medical needs, deafblindness, and special education. And y'all, it may not always be pretty, but it's real, and it's always for the love of Ivey.
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I love you my sweet soul sister.
Sending peace across the great divide and wishing so badly we could just hang out together and chat and escape perhaps. Just for a bit. To regroup and recharge for the journey ahead.
One day my friend. One day we will make that happen.
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