Skip to main content

Kisses for Chris

Comments

Heather said…
Hello my Georgia friend.Feels as if I haven't been by in forever.Why is that,because I do know for certain that I think of you and your precious love often.First ... kisses are the best.Wish I could be a recipient of Ivey's.Maybe one day.Caught up on some of the last posts.Beach fun.Pneumonia not.School great.Big school so great.Carpenters,well you are a master.Your children,the same.Ivey, the material,the gift,the extraordinary miracle.Reminded me of Mother at the Swings.Just as powerful and beautiful.I learn from you each time I come here.I do feel that sting almost daily.Like the little girl who,not too long ago told me"You baby is funny looking"...a pain like that doesn't go away.Ever.Even from a child.But I go and I try to remember that this world is full of loving caring and kind people,for the most part and I try myself to be a carpenter.This last 9 months has been interesting.I often think what kind of looks would we be getting if my stubborn Zoey had lost her hair during chemo.This life is constantly lending me opportunity to build bridges instead of walls.Thanks for the reminder.Ivey looks beautiful as ever.The boys,handsome as ever and momma,hope you are taking care of you.Much love from California.
KrisKay said…
Couldn't be sweeter!!

Popular posts from this blog

And Sometimes Feeding Your Kiddo Looks Like This...

A simple sentence. No one said it to me in the beginning, but boy did that tube cause a lot of chaos. The NG tube graduated to the G-tube which morphed to a GJ- tube…. A brief history of Ivey's feeding tubes: *The NG tube was in place the first time I ever saw my daughter in the NICU.  My only memory of her without a feeding tube is them placing her in my arms immediately following her birth. *The G-tube, well, that is a story within itself.  That decision did not come lightly.  Another hole in her.  Another decision on our plate, but not really on our plate, it was apparent it was a medical necessity for her survival.  Literally to give her a chance to live.  A permanent decision.  A 5am panic attack in the Scottish Rite elevator that happened to coincide with Dr. Meyers arriving at the hospital at the same time as me.... Our intersection in the elevator set the stage for the years to follow. From that point on, he knew I was a little nuts and a lot...

BEAUTIFUL GREEN EYES........

Sibling Secret Sauce

Siblings of kiddos with disabilities are amazing humans walking amongst us. They live a life, most often, in the shadows of their sibling who simply needs "more". More time. More direct attention. More of more. We have now come to a fork in our road. Our boys are young men, and, our daughter is a young lady. I'll be honest, I was uncertain what life would look like once the boys left this home, once they had their own time, in their own personal sunshine. We found out quickly once Knox left for college his freshman year what that would look like. And then, when Walker left, we knew what life would feel like in their absence. There was too much space. Ivey felt it. We get many compliments about the relationship the boys and Ivey have with one another. Hints here and there that, maybe, Matt and I had some secret recipe to parenting a household with a child that is very medically complex and a very complex communicator. This is what I can tell you - there is no re...