Okay. I am mired down in 'stuff', just like the rest of the world. So, here's my question. How do you, other special needs families, get it all done? How do you get the house work caught up after the holidays, spend quality time with the ones who need it, practice signing, keep hearing aids in, keep the feeding pump on schedule, (thank the Lord the eyes are on hold), talk to family and friends (well, actually, right now, just return phone calls in adequate time), check emails, keep the follow up appointments, schedule the needed follow ups, keep the therapy schedule, and somehow maintain sanity?
Is there really such a thing as sanity?
Just curious.
I am questioning mine right now.
It's the first full week of January and I am already behind, umph. And to imagine, I actually have friends who think I am organized.
So seriously, will all of you out there (with shiny tieras and rubber gloves and don't forget the minivans) give me some hints as to how you get it done. With a smile on your face.
If I never post again....I probably suffocated in dust bunnies-
Confessions from the mind of this sleep deprived mom navigating the world of complex medical needs, deafblindness, and special education. And y'all, it may not always be pretty, but it's real, and it's always for the love of Ivey.
Subscribe to:
Post Comments (Atom)
Sibling Secret Sauce
Siblings of kiddos with disabilities are amazing humans walking amongst us. They live a life, most often, in the shadows of their sibling w...
-
It has been 2,190 days. That seems like a lot of days. However, there are some out there who have been doing this thing much longer, say for...
-
Thank you all so much for taking time to share this milestone with our family. It is so great that you all are a part of our lives just as I...
9 comments:
Hi Gwen,
I can totally relate. I am always telling Dan that I need a secretary! Hah! I just try to make lists and take pride in the things I get to cross off- even if it takes a long while to get done with a list. I have tried not to stress out about things if I can help it. I really love reading your blog- thanks for sharing your life with us. Here is Eli's carepage info if you are interested:
www.carepages.com
Carepage title: LittleHum
Take care and Happy New Year!
Martha Hummer
Eli's mom from CVI
Hi! I've been a silent follower for a while now and you don't know me. You have an amazing family! I don't have all the medical things to worry about as you do and I still don't get everything done. I do make lists and schedules. But it's getting everyone to cooperate with them:) I'm behind already this year. My dryer decided to quit and that threw off my groove:) Hope Ivey is doing well. She has come so far since I started reading your blog. Hope you have a wonderful new year! Mindy
Have I told you how much I love the Keillor quote on your sidebar!!!!
gwen, i have not been on here in a long time and just got caught up on the last several months. it's so good to see how well ivey is progressing. i hope you all had a merry christmas. and, in my humble opinion, you can never get it all done. i'm learning to accept that for my life. :)
(I haven't blogged in awhile)
I have to say you are not alone, I am also behind, and I do not have the medical issues to deal with that you do with your little Ivey, but January is here and I'm a few weeks behind....you are not alone....I think life just happens...and a very wise mentor "mom" once told me "the cleaning is always going to be there, you always have to do it, so cherish the moments with your children, your family..." and that's why I'm behind. It's been 30 something degrees here in Oklahoma and last Sat it was 75 (no joke). We dropped everything and spent the entire day outside with our boys.
So basically, remember what's important and don't stress the things that will always be there, like our laundry and housework!
Gwen, here's praying you are able to wade through it all a bit, and feel a little less overwhelmed. Honestly, I'd say maybe a late Christmas gift to yourself to hire an extra set of hands to come in and help you for a day, with whatever you need, then maybe a few small windows of escape for you to get away a teensy bit, so you feel like you have a bit of breathing space. There might be a college aged girl who could come in and help you get a bit more caught up, even just to hold her finger in the hole of the dam so you can get to a few specific things on your list that are weighing the most heavy.
Howdy Gwen,
The dust bunnies may get big enough to glue eyes on and give as gifts, but when they're little the kids won't remember that. Once they're old enough for the bunnies to make an impact, that's when they're old enough to help.
I find it's not just about making the lists, it's about prioritizing the lists and then realizing that some things really aren't as important as having a snuggle and roll time with Acer on the bed.
There's also a site called motivated moms.com where they break the housework up into 5-10 minute sections to accomplish during bits of the day. I find that helps alot.
take care
Heather BT
No words of wisdom to impart.Just the basic,don't sweat the small stuff and the rest seems to take care of itself.I have been blessed with not needing much shut eye and since Zoey has joined our happy clan, with all her extra,extras,my type A personality has come in quite handy.You do an amazing job Gwen.Just the fact that your feet hit the floor each day upon awakening ... accounts for something.Love to you all.
Hey Ms. Gwen! I AM that college aged girl :)and I'm so ready to be back up there to spend some time with Ivey and help you out. School starts the middle of next week, and I'm planning on coming back this weekend. Please let me know anytime I can help and I am there. I've missed Ivey and the rest of your family and cannot wait to see yall all again very soon!
Post a Comment