On film with Bert, Ivey's PT.
How great is that? Standing!
How great is that? Standing!
A simple sentence. No one said it to me in the beginning, but boy did that tube cause a lot of chaos. The NG tube graduated to the G-tube which morphed to a GJ- tube…. A brief history of Ivey's feeding tubes: *The NG tube was in place the first time I ever saw my daughter in the NICU. My only memory of her without a feeding tube is them placing her in my arms immediately following her birth. *The G-tube, well, that is a story within itself. That decision did not come lightly. Another hole in her. Another decision on our plate, but not really on our plate, it was apparent it was a medical necessity for her survival. Literally to give her a chance to live. A permanent decision. A 5am panic attack in the Scottish Rite elevator that happened to coincide with Dr. Meyers arriving at the hospital at the same time as me.... Our intersection in the elevator set the stage for the years to follow. From that point on, he knew I was a little nuts and a lot...
Comments
I am sitting here all the way in New Zealand, watching this film and I have chills all over my body...what an incredible little girl. I am so happy for her and for you! Wish I could be there to share in the excitement, but I am always cheering for her no matter where I am. All my love. Hope you are all well! Please tell Bert I said hello, I imiss her, and she is in my thoughts always.
Rebecca
Love you lots
Tami
You go girl!! Woo hoo!
You can really tell that Bert loves Ivey. How wonderful. I love little Ivey's shoes.
-Shannon in Austin
Eamon has a kid kart arriving this week. It is long overdue and much needed! Eamon so wants to be socially involved, but does better in a side-lying position. Hopefully the Kart will provide the support he needs to be more upright! He is being casted for braces tomorrow, and there is talk of a stander. Very exciting.
Tracy
Simply beautiful.
You have an exceptional little girl there!
And We know you know that@@@@