Skip to main content
Devishly angelic












Transforming transformer....












on Ivey's head












Can you believe this curly hair?

Comments

Anonymous said…
Are those curls in Ivey's head? How cute. I love reading your updates. Thinking about you and your family. Okie Nana
Heather said…
Super curly and super cute Miss Ivey!Boys are pretty handsome as well!
Wow, you two get on like a house on fire! I wish my brothers got on as well as you two!
Abigail
of the Bernard Bunch
Anonymous said…
You have a precious daughter! I will be working with a baby with microphthalmia. I have not seen him yet but am so excited to work with him.When I was given the referral, I was also given a link to your blog (My sister has followed Ivey's story for some time.), I knew I had to take him. Your website has been extremely helpful.
Heather BT said…
Wow!
I never would have guessed that she had that much hair from the front. Such wonderful blond curls.
Not sure if you're curl experienced, but I have curly hair and would wholeheartedly recommend finding a good hair detangler. I still use it on myself at 41, it just makes life so much easier wish my mom would've never stopped buy it, would've saved me many a painful snarl.
Take care
Heather BT
Shari said…
Those are the curls on Ivey's precious little head? Beautiful! She is such a sweet baby!

Popular posts from this blog

And Sometimes Feeding Your Kiddo Looks Like This...

A simple sentence. No one said it to me in the beginning, but boy did that tube cause a lot of chaos. The NG tube graduated to the G-tube which morphed to a GJ- tube…. A brief history of Ivey's feeding tubes: *The NG tube was in place the first time I ever saw my daughter in the NICU.  My only memory of her without a feeding tube is them placing her in my arms immediately following her birth. *The G-tube, well, that is a story within itself.  That decision did not come lightly.  Another hole in her.  Another decision on our plate, but not really on our plate, it was apparent it was a medical necessity for her survival.  Literally to give her a chance to live.  A permanent decision.  A 5am panic attack in the Scottish Rite elevator that happened to coincide with Dr. Meyers arriving at the hospital at the same time as me.... Our intersection in the elevator set the stage for the years to follow. From that point on, he knew I was a little nuts and a lot...

BEAUTIFUL GREEN EYES........

Sibling Secret Sauce

Siblings of kiddos with disabilities are amazing humans walking amongst us. They live a life, most often, in the shadows of their sibling who simply needs "more". More time. More direct attention. More of more. We have now come to a fork in our road. Our boys are young men, and, our daughter is a young lady. I'll be honest, I was uncertain what life would look like once the boys left this home, once they had their own time, in their own personal sunshine. We found out quickly once Knox left for college his freshman year what that would look like. And then, when Walker left, we knew what life would feel like in their absence. There was too much space. Ivey felt it. We get many compliments about the relationship the boys and Ivey have with one another. Hints here and there that, maybe, Matt and I had some secret recipe to parenting a household with a child that is very medically complex and a very complex communicator. This is what I can tell you - there is no re...