Skip to main content

Waving Bye-Bye

Yesterday Ivey waved bye-bye for the first time. She did it again today as my dad was leaving. Coincidence? I don't think so. The thing is I have been adamantly trying to teach her to hold up two fingers as a little surprise for everyone for her second birthday, which is this Friday. Not so much. She could absolutely careless about 'counting' on her fingers. This is just another stance Ivey is taking to remind her momma that she will do what she wants, when she wants, and how she wants!! That little girl has spunk.

Ivey has a couple of appointments coming up at the end of the week. So, here is the plan for the remainder of the week. First we will see her neurologist on Thursday and hopefully get his blessing that all things are leveled off in that little brain of hers. Friday morning we will wake up to sing happy birthday to the birthday girl. Then we will hop in the car and head to the trach clinic, which by the way, we hope to be her last trach clinic! All things going well, I expect her pulmonologist will give us the thumbs up to check in to the sleep clinic next week. My baby girl may just get the best birthday present we could ask for and get that trach out next week.

Right now the idea of life without the trach is surreal. Honestly, I can't remember what it was like to never have a coughing baby, breathing treatments, that horrid green bag (Ivey's suction), and an aching back from carrying the suction around – Everywhere. Can you believe I might get to take Ivey out, in public, and just carry her – like a baby- my baby! Anyway, I am trying not to get my hopes up too much, but that is the impossible at this point. I guess waving bye-bye is the more appropriate thing to learn this week. We will definatly be waving bye-bye to the trach. Maybe waving bye-bye to the past year of her life, trached, isn't such a bad thing.

Speaking of the past year, can you believe she will be two? Two whole years in Iveyland. Obviously, there will be more to come about her birthday. For now keep in mind that I will print out and keep all of the comments on her birthday, so make sure to leave a message to my sweet pea wishing her a happy birthday!

Comments

Anonymous said…
How exciting for you and Ivey. Early Birthday wishes for Ivey, my birthday is the next day. I will keep you and Ivey in my prayers. Okie Nana
MimiG said…
Happy, Happy Birthday Ivey! This is my first visit to your blog, but won't be my last. You sound like a terrific girl in a great family. I'll bet you keep your brothers in line.
I hope you have a wonderful, fun birthday. Wave those two fingers at everyone so they'll know you're a "big" girl!!
You Go Girl!
MimiG
Karen Owens said…
So cool! I'm so happy for you Gwen -- and Ivey!

Popular posts from this blog

BEAUTIFUL GREEN EYES........

Submitting to Lack of Control

When Ivey was a baby, I literally had drawers and spaces in her closet labeled, everything had a space, a place.  One special friend loved showing off Ivey's closet to newbies coming by for a visit. This level of organization mystified my friend. Secretly, I wanted to go back to haphazardness.  Justifying why I did this is simple.  At the time, I had friends helping me with my laundry, as were my mom and some night nurses.  With so many people, I found it more efficient, for all of us, to label everything.  No one had to search or guess where things belonged.   This approach to find order has only amplified with time. I have come to accept that being Ivey's mom has brought out a controlling aspect in my personality. For the record, I have always found peace in order and organization.  It could be described as controlling, maybe.  Ivey ramped up my need for order. On her hard days, or in times leading up to what I know will be hard, my need for order raises it’s merciless head. 

Ivey Elizabeth Sirmans

Ivey Elizabeth Sirmans was born Tuesday April, 25th at 5:26 a.m. She weighed 5 lbs 11 oz and is 17 inches long. She has beautiful long fingers and toes like Gwen, and her hair is dark like Matt's. She loves to be touched and is happiest when she is being held. Ivey is a strong little one who is breathing on her own. Her strength is a blessing as she will face some challenges in the future. The initial genetic testing showed Ivey has a partial deletion of chromosome 21. There are many tests pending, and as we find out more, we will let everyone know those results. She has a double cleft palate and a cleft lip which will require surgery at some point in the future. She is blind. She has had one hearing test which will be repeated due to the noisy NICU. The aortic valve in her heart has 2 leaflets instead of 3, but despite this, her heart is working wonderfully. Currently, she has a feeding tube in her nose, and she is learning how to nurse from a bottle. Once her feeding is successfu