Skip to main content

loving her new stander



Ivey is up and standing. She has on her new shoes and AFO's. Heather, Ivey's speech therapist, gave her the green tube last week also. Ivey will chew on any tube she can get her hands on (she may be blind, but she can find any of her tubes) like her suction tube, venting tube, feeding tube, nebulizer tube and her humidifing tube. This tube is actually made to be chewed on, can you believe that? She loves it. She is great a manipulating it with her hands.

Comments

Jennifer said…
Congratulations on another milestone! What a great idea the green tube is...way to go, Heather!
Blessings to Maddie's family for sharing of themselves in the midst of their own loss.
Leslie said…
Don't you love good therapists! And Maddie's family...God bless them.

Unknown said…
Gwen,
She look so great in the stander. I'm so glad she is liking it. I'll miss you guys, but will see you soon. Take care. Love,
Rebecca
It is so great to see Ivey in action!! I am all teary now, wiping away the tears as I type...

God Bless!!!!!!!! {{{HUGS}}}
Borbe Bunch said…
Beautiful.
So happy for Ivey's new way to experience her world around her!
The girls and I watched the videos more than once! :) Tears, on my part, were flowing...thank you for sharing.
Alison said…
I too have tears! For Maddie's family and for Ivey's new opportunity! How exciting to hsee her in action, and to hear her sweet voice!
Sarah said…
Gwen, what a blessing! Ivey looks so good, and I loved hearing your voice! Blessings to Maddie's family, and to yours :)

Popular posts from this blog

And Sometimes Feeding Your Kiddo Looks Like This...

A simple sentence. No one said it to me in the beginning, but boy did that tube cause a lot of chaos. The NG tube graduated to the G-tube which morphed to a GJ- tube…. A brief history of Ivey's feeding tubes: *The NG tube was in place the first time I ever saw my daughter in the NICU.  My only memory of her without a feeding tube is them placing her in my arms immediately following her birth. *The G-tube, well, that is a story within itself.  That decision did not come lightly.  Another hole in her.  Another decision on our plate, but not really on our plate, it was apparent it was a medical necessity for her survival.  Literally to give her a chance to live.  A permanent decision.  A 5am panic attack in the Scottish Rite elevator that happened to coincide with Dr. Meyers arriving at the hospital at the same time as me.... Our intersection in the elevator set the stage for the years to follow. From that point on, he knew I was a little nuts and a lot...

BEAUTIFUL GREEN EYES........

Sibling Secret Sauce

Siblings of kiddos with disabilities are amazing humans walking amongst us. They live a life, most often, in the shadows of their sibling who simply needs "more". More time. More direct attention. More of more. We have now come to a fork in our road. Our boys are young men, and, our daughter is a young lady. I'll be honest, I was uncertain what life would look like once the boys left this home, once they had their own time, in their own personal sunshine. We found out quickly once Knox left for college his freshman year what that would look like. And then, when Walker left, we knew what life would feel like in their absence. There was too much space. Ivey felt it. We get many compliments about the relationship the boys and Ivey have with one another. Hints here and there that, maybe, Matt and I had some secret recipe to parenting a household with a child that is very medically complex and a very complex communicator. This is what I can tell you - there is no re...