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Playing music with D.
She is wearing her passy miur valve (the purple thing). We just call it her passy. This little contraption allows Ivey to talk. It also can come flying off like a bullet whenever she coughs. So, we pin it to her so not to loose it. It maybe a pretty purple piece of plastic, but it is worth its weight in gold - literally.


Just a little taste of applesauce. Finally, we found a spoon that Ivey actually likes. These flat spoons are from the ice cream at Honey Moon Bakery.

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Anonymous said…
How neat that the "passy" enables Ivey to have her own voice! I read your previous post too . . . Ivey has a lovely smile. Don't you just love when appointments are pushed further away? Rachel is finally seeing her cardiologist once a year (at this point anyway) and it's a nice break. :0)
August 11, 2007 at 7:15 PM
Jennifer said…
Great pictures in the last two posts and even BETTER news!
August 11, 2007 at 8:51 PM
Anonymous said…
She is just precious! Sorry I haven't posted comments lately. We've been so busy around here...
August 13, 2007 at 11:23 PM
Lei said…
Sasha has that instrument set and just loves it too!
August 16, 2007 at 4:59 PM
Renee said…
Does Ivey receive music therapy or were they just playing for fun? We do music therapy 2x a month and all the boys get to join in...and what fun it is!
August 16, 2007 at 9:47 PM
Borbe Bunch said…
Hi friend, I love seeing pics of sweet Ivey. What a blessing to see her making music and rolling around...what a miracle! :) She really is...I am so thankful that you share her precious life with us!
God Bless,
Liz
August 18, 2007 at 10:41 AM
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