Thirteen seems to be a lucky number around here.
If you recall, Ivey had her last surgery on Friday the 13th. Yesterday, after 13 months, she rolled over from her back to her stomach. It is official ---- Ivey is mobile. She is one determined little girl. Look out child proofing-it's on!
Ivey had an appointment with her ocularist last week. Her conformers are really starting to increase in size. This week she will visit her GI doctor for the first time in three months. A record. I spoke with his nurse so much for awhile that she actually recognized my voice, which is not something we aspire to around here. It has been three short months since he last saw her, and he is going to be amazed. She actually has chunky little thighs.
Ivey also got her first AFO’s last week. You can see them in one of the pictures. They are the tiny purple braces on her legs. A love-hate relationship is developing toward them. I love that they will help her flexibility and to stand. She hates to wear them.
Oh, Ivey has also learned a few more ‘tricks’. She pulls the thermavent off of her trach (the clear plastic covering), then she can grab hold of her trach and…..she yanks at it. (A very bad trick to pickup.) She also pulls at her mickey button in her stomach if she is ever naked. If she gets one good grip on that thing its outta there. (Yet another very bad trick to pickup.)
Because of these two things, for the first time in over one year I have actually had to tell Ivey 'NO'. That has to be a record. How many parents can go one entire year without ever telling their child no?
She is getting feisty!! I love it!!
Don't miss Walker the santaeasterbunny in one of the pictures. Yes, it Christmas and Easter in June around our house.
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Siblings of kiddos with disabilities are amazing humans walking amongst us. They live a life, most often, in the shadows of their sibling w...
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Ivey Elizabeth Sirmans was born Tuesday April, 25th at 5:26 a.m. She weighed 5 lbs 11 oz and is 17 inches long. She has beautiful long finge...
6 comments:
Love the pictures and love the new tricks Ivey is doing. :) And to be able to go a year without telling a child NO is a miracle! I would have to say that we probably went that long (maybe a little longer) with our second one. And please forgive my ignorance, but would you explain to me the purpose of conformers? I've searched the internet, and maybe you've explained it before, but I could not find enough info in "simple terms."
One determined girl! Way to go Miss Ivey!!! Can't wait to hear what the dr thinks of her growth. So very exciting!
Sounds like your hands are even fuller than they were before:) But with sooo many good things... Praise God. I can't even imagine what kind of child proofing you are going to have to do:)
I love you slide show! And the picture of you and you 3 little ones is beautiful. Looks like they have a Mommy who is beautiful inside and out:)
Awesome updates all the way around...even telling her No. I love a girl with some spirit!
And the Santa Easter Bunny sounds like a great combination...
God is good.
I love the purple AFOs :) Nice and girlie! Ezzy has some that he wears at night and also in his stander, his have cars, trucks, airplanes on them, so boy!
I am so happy to read that Ivey is now rolling over, how great!! And the saying NO :) great, so great.
Happy to hear so is gaining weight too, praise God!!
I love all the pictures of Ivey--she is getting so big! Tell her Addie says congratulations on rolling over--from one feisty girl to another :)
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