Confessions from the mind of this sleep deprived mom navigating the world of complex medical needs, deafblindness, and special education. And y'all, it may not always be pretty, but it's real, and it's always for the love of Ivey.
2.07.2007
First off, Ivey is doing AWESOME! She is happy and playful. Having the new ‘button’ instead of the G-J tube hanging from her tummy at all times has given her some freedom that she has never had. She is adjusting to her new palate. It is fun to watch her check it out with her tongue. Unfortunately, she is wearing welcome sleeves for two weeks to prevent her from putting her fingers in her mouth. Welcome sleeves velcro around her arms to prevent her from bending her arms at her elbows. Ivey also has to rinse her mouth with Nystatin twice a day. This is a medication to prevent a fungal infection in her mouth. Tastes absolutely terrible-I tried it. Imagine not getting to eat and the few things that do go into your mouth tasting like some thing you apply to your feet. Ugh!!! She is a little trooper. Happy as a lark.
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5 comments:
I'm so glad you're doing well--hooray for a good recovery this time!! :)
Great news about Ivey. But bless her heart with the Nystatin. I had to do a "Swish and swallow" one time, and it is awful. Loved the comparison to something you put on your feet.
Haven't visited in awhile, but I still pray daily for your sweet family.
It thrills my heart to click over here and read good news (except for the nystatin...yuck!)
I am so happy for ya'll!
Yeah for Ivey!!! She is a little trooper alright:)
So thankful! Yea! What a nice word, "welcome" sleeves. I guess it will be a welcome thing when she gets to take them off! You are the trooper as much as she is. Celebrate!
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