The past three weeks have been very, well, I am not sure that a particular word can actually describe them, but Trying would be one word. Emotional another. Confusing a third. Draining a fourth. And finally, the past three weeks have finally found within them a sense of peace and resolve.
Acceptance would be the overlying theme of the past three weeks.
I often read a blog that I began reading in the first days that it was established, which was close to the same time of Ivey's birth. I read the blog because I found my own thoughts there at times. Our stories took very different paths. Often I read the post and completely ache for this family and send what I can only hope are words of encouragement and confirmation, other days I read the post out of complete fear of my own family. Today there is a post that once again feels like my very own thoughts, especially after the past three weeks. So take a moment and read HERE. One thing that Ivey has taught both me and Matt is stated in this blog so eloquently. No matter your pain, it can never be compared to another's pain. Never. He says - pain can not be measured or compared. Pain can only be experienced. So go now and read!
Confessions from the mind of this sleep deprived mom navigating the world of complex medical needs, deafblindness, and special education. And y'all, it may not always be pretty, but it's real, and it's always for the love of Ivey.
Subscribe to:
Post Comments (Atom)
Sibling Secret Sauce
Siblings of kiddos with disabilities are amazing humans walking amongst us. They live a life, most often, in the shadows of their sibling w...
-
Thank you all so much for taking time to share this milestone with our family. It is so great that you all are a part of our lives just as I...
-
So, I did it. At five thirty Wednesday morning, I was up leaning over a crib singing Happy Birthday to a sleeping baby who had no idea that ...
4 comments:
Still praying for you and little Ivey. Praying that the Body of Christ can bear a little of your burden's for you. Sorry you've had a rough few weeks!
Your comment on my post was about the cutest thing ever!! And, JCT looks like Erik (or so everyone says) and Joshua looks like me. And, the walrus shirt. . . Gotta love Baby Gap for boys!!
I am going to go read the link you left right now!! Thanks!
Okay, first, your comment on my blog is like the cutest thing ever! :-) And, EVERYONE says that JCT looks like Erik and Joshua looks like me. And, the good old walrus shirt. . . Joshua wore and now JCT and soon Elijah. . . Gotta love Baby Gap for little boys!!
And, I love Eliot's blog. I sat down one Friday night last October and read the entire thing in one sitting. And, I think I used an entire box of kleenex. Precious. I can't wait to go there now!
I don't know how I missed this post--we both were touched by Matt's quote about pain. I just directed my mom to his site; there's a couple in my parents' church whose newborn son has Trisomy 18, like Eliot. I thought Eliot's site would be a good source of encouragement for this other family.
I'm sorry things have been trying. Sometimes I think "trying" is much worse than "busy," "chaotic," or even "bad." Trying just wears us down. I'm praying for you, Gwen:)
Post a Comment