Ivey did great this morning during surgery. Her cleft palate surgery was successful - no complications! She is in pain and becomes very agitated as the pain medication begins to wear off. Cuffs are on her elbows to prevent her from bending her arms and placing her hands in her mouth, which is her favorite thing to do. She will wear the cuffs for about two weeks. She is doing awesome and her color and sats look great!
More good news. Ivey's ENT did scope her airway and found that it is not as restricted as it was during the time of her lip surgery and tracheotomy. He thinks that time and growth may be all that is needed for her airway. Reconstructive surgery may not be necessary. However, she is much safer with the trach for now.
And for all of you who are trying to learn how to set up a feeding for Ivey, there is an added bonus. Her new button has Jejunal (J-tube) and Gastic (G-tube) marked on the button itself! Now you do not have to worry about which is which, only what goes where.
Ivey is sleeping peacefully right now, so is Matt. She is in her regular room on the floor (NO ICU's!!!) here at Scottish Rite.
Thank you all for your prayers. They have definitely been heard and answered! There is a sweet healthy little girl lying asleep right now because of them. We love you!
Happy Groundhog's Day! Did he see his shadow?
Gwen.
Confessions from the mind of this sleep deprived mom navigating the world of complex medical needs, deafblindness, and special education. And y'all, it may not always be pretty, but it's real, and it's always for the love of Ivey.
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10 comments:
Gwen, I can't remember what seeing his shadow means (winter or not?), but my mom, who lives in PA, says the groundhog says spring is coming! Maybe this is perfect, since today's surgery went so well!
Thank you for updating; I've been praying for her all day and am so glad to hear the great news!!
Hugs :)
Praise God!! I hope that yall have a restful night!!
I am so glad to hear things are going so well! I am also glad to hear that the airway restriction is not as bad as originally thought. I will continue to keep you all in my thoughts any prayers.
GREAT NEWS! You all have been on my heart all day!!! Such sweet relief!
Gwen~That is wonderful news! We pray that God will wrap His arms around all of you tonight so that you can rest peacefully! Can't wait to see you again, maybe we can visit somewhere besides Kroger!
You'll all be in our prayers!
Love,
Jud, Pam, Julia and Sam
Gwen,
We just spoke to Matt and are thrilled over the great news. If you need anything, please call.
Your family is always in our thoughts and prayers.
With love,
Candi and Kevin
Gwen, I am so thankful that things have gone well for your sweet Ivey today. Isn't it amazing what they can do to feed our little ones? I pray that Ivey's G-J works beautifully. That is such encouraging news about her airway! May God bless you and your precious family. Trish
Hooray! I am so happy to hear all the great news!!!
Congratulations little Ivey, I'm so happy to hear that all went well with your surgery. You get stronger kay, and remember that mommy and daddy are there and they'll take good care of you and that they LOVE you so much!
Thanks to God for answering everyone's prayers. He will only answer more. He's so awesome!!!!
Hugs Ivey!
I am so glad to hear the good news. (My goodness! I forgot all about Groundhog's Day. LOL)
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