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Well, if you read this post last night, you will notice that it has altered slightly. Last night we were waiting to meet a new nurse for Ivey at 11:00 p.m. This morning at 4:00 a.m., I am the nurse taking care of Ivey. Matt was the nurse from 12:00 a.m. to 4:00 a.m. A slight modification to this post was required. I guess that particular person just was not meant to work with Ivey. Obviously, she was not a perfect fit.

Ivey came home Thursday. It was amazing to watch the boys unwind as soon as she entered the door. They began to eat better and best of all, they have slept better over the weekend. Also, they have barely left their sister for a moment.

Ivey had a great weekend. She is slowly adjusting to her new home. Keep in mind, we moved and our new home is not home to her. We are all working Ivey's new schedule into our daily routine. We thrive on a schedule around here - a schedule that did revolve around Ivey's feedings - a schedule that now revolves around her feedings and the care and maintenance of her trach.

Once everything is incorporated, things will run like clock work around here again. We have added more equipment to carry around, but we are quickly making adaptations to make mobility a little easier. And where we have added more gadgets, there were some advantageous trade offs for those gadgets. For example, the G-tube she now has for feeding is much easier to work with than a ng tube. Also, on Wednesday before Ivey came home, the doctors inserted a J-tube within the G-tube to hopefully help with her feedings. The J-tube bypasses Ivey's stomach and goes in to her intestines, the duodenum to be exact. Now we feed her through the J-tube. The bonus of the J-tube is that she should now gain weight faster and it seems to have alleviated a vast portion of her reflux. Yeah!

Hope you all had a great weekend! Can't wait to see you!!!
Gwen.
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Comments

Jennifer said…
I had you on my heart all afternoon yesterday and first thing this morning. Glad things are starting to settle into some sense of normalcy. Can I come give you some relief this morning so you can sleep?
December 4, 2006 at 7:31 AM
Anonymous said…
Gwen, I bet it felt so good to sleep in your own bed! (Well, when you weren't on Ivey Duty!!) I'm so glad you are home, and I'm praying for the best nurse yet--I hope this is a happy week for you:)
December 4, 2006 at 10:24 AM
Barbie @ Mamaology said…
I am always amazed at how well you adjust to all the changes and disappointments! I am praying that you do get the right nurse soon!!

How sweet that Ivey's brothers are so much more at peace with her home and right by her side. Blessed little girl she is.
December 4, 2006 at 1:20 PM
Erin said…
I am so glad that you are home. Sorry about the nurse. I will continue to pray for God's nurse for Ivey. Take care of yourself, sweet girl.
December 4, 2006 at 8:16 PM
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