Ivey was admitted into Floyd for observation early Monday morning. Around 6:15 Monday morning Ivey had her first seizure. We transported her via EMT to the hospital. She did stay overnight for observation and seems to be doing well. She is on medication that will prevent her from having other seizures. Ivey will also have procedures today to try and determine where to go from here.
We have known from the beginning that some children with Ivey's genetic diagnosis have been known to have seizures. However, not all have them. We were hoping to have dodged the bullet. More than likely this seizure was not a single incident, she will probably be prone to seizures in the future. They can be controlled with medication. The focus will be on 'Why?' she is having them.
There are so few known cases of this particular genetic diagnosis. There is a very limited amount of information so it is vertually impossible to predict her future. As with many genetic disorders, such as Downs, there is information to compare; Ivey's situation is not so simple. Everyone uses their best medical experience and still Ivey seems to do her own thing.
So she is here at Floyd on the pediatric wing.
Gwen.
We have known from the beginning that some children with Ivey's genetic diagnosis have been known to have seizures. However, not all have them. We were hoping to have dodged the bullet. More than likely this seizure was not a single incident, she will probably be prone to seizures in the future. They can be controlled with medication. The focus will be on 'Why?' she is having them.
There are so few known cases of this particular genetic diagnosis. There is a very limited amount of information so it is vertually impossible to predict her future. As with many genetic disorders, such as Downs, there is information to compare; Ivey's situation is not so simple. Everyone uses their best medical experience and still Ivey seems to do her own thing.
So she is here at Floyd on the pediatric wing.
Gwen.
Comments
It has been awhile, but I can still see the Pediatric Wing in my mind. I think all of the nurses who worked when I was there are probably gone, but I am praying that whoever is there is taking good care of sweet Ivey.
And even though men don't know much about Ivey's condition, God does. He knit her together just the way He planned. She is precious!
And even though men don't know much about Ivey's condition, God does. He knit her together just the way He planned. She is precious!
By the way, I love Ivey's cardiologist. Erik used to play basketball with him when we lived there. Jen told me that you were going to him. Sweet man!
And isn't that crazy that my dear friend Erin worked at the hospital Ivey is in? Small world:)
Matt, it was so wonderful to see you again. And Gwen, I cannot wait to meet you and Ivey. Brian and I think about you all every day and pray that you keep strong and that things get a little easier along the way. There is always an open door in Campbell River, B.C. for your family. We have the ocean at our back door, beautiful beaches, mountains, and woods, as Matt already knows. Take care and love to all.
Mevi
Heather