Thanks so much to everyone who is bringing a meal this week. Special thanks to all of the faithful blog readers who continue to pray for the Sirmans family and write notes of love and support.
A simple sentence. No one said it to me in the beginning, but boy did that tube cause a lot of chaos. The NG tube graduated to the G-tube which morphed to a GJ- tube…. A brief history of Ivey's feeding tubes: *The NG tube was in place the first time I ever saw my daughter in the NICU. My only memory of her without a feeding tube is them placing her in my arms immediately following her birth. *The G-tube, well, that is a story within itself. That decision did not come lightly. Another hole in her. Another decision on our plate, but not really on our plate, it was apparent it was a medical necessity for her survival. Literally to give her a chance to live. A permanent decision. A 5am panic attack in the Scottish Rite elevator that happened to coincide with Dr. Meyers arriving at the hospital at the same time as me.... Our intersection in the elevator set the stage for the years to follow. From that point on, he knew I was a little nuts and a lot...
Comments
I hope you get some sleep tonight!!
At anytime you need a meal please do not hesitate to call me. I would be happy to drop something by.
You all are in our thougths and prayers.
Thank you for your precious words left on Ashley's journal. I know you must be so very tired and I just wanted to let you know I am praying for you and your sweet baby girl. How I wish I could send a smile, a hug, a meal, anything to ease the burdens you must be carrying. God must have the most incredible plans for our families as He continues to grow us through the lives of our daughters. I too am so thankful to Sarah for opening my heart up to you and your family. May God bless and take care of you and your family today. Love, Trish (Ashley's mommy)
After reading your blog, I checked my last post for comments. I was so excited to see a comment from you!! You commented (I think) on the verse - my portion, my cup. I have the awful habit of comparing my lot to the lot of those around me, so this verse has become like a life verse for me. He has given us each our own unique portion and cup - our own journey, our own assignment. No two are alike. And, we must take what we are given and run with it!! And, what a precious comfort to know that our lot is secure in Him.
God bless you and your sweet family!
I would have NEVER imagined how hard it could be as a mom, especially when things don't turn out as you'd expect them. Hang on to that support and someday you may be able to help someone else, too.
I am definitely praying for Ivey, and her wonderful family. ;)
Pablito ha tenido el martes 24 una segunda cirugia en el estómago. Se le colocó un "Botón para Gastrotomía". La fecha inicial de la cirugía era el lunes 23, pero Pablito no respondió bién a la anestesia y no se pudo efectuar la operación. De todas maneras la operación se complicó más de lo esperado y recién el viernes pudimos verlo sonreir un poco. Todavía esta un poco delicado, pero ya lo tenemos en casa. Despues les cuento como se trató el problema de reflujo de Pablito, quizas sea una alternativa para ustedes. Respecto de lo que me escribieron, los médicos tuvieron problemas para colocarle el respirador artificial. Lo pudieron hacer despues de tres intentos y luego de ponerle un sedante fuerte. Sabemos que sus vias respiratorias son angostas, pero no nos dijeron nada acerca de alguna otra anormalidad. Les escribiré pronto. Dios los Bendiga. Adios.