Thank you for taking a moment to say a prayer for Addison.
Her mom says she made it through the surgery just fine.....
I wanted to take a moment to update you on Ivey's progress. The past two weeks have been very eventful for her. In nine days she has been to the Opthamologist, Orthopedics, Feeding Clinic, Ocularist twice, Dr. Rogers three times, the cardiologist once and somewhere in there she had therapy, not to mention time keeping up with her brothers. Whew!
Her eyes are adapting to the new conformers. She also has a new addition to her mouthpiece that will begin to raise the flat side of her nose. After x-rays with orthopedics, her physician explained that her spine and hips look good. She does have some "oddities" to her sacrum bone. We will have to wait to see how her sacrum will affect her long term....crawling, walking. Ivey also received good news from her cardiologist. The heart is working well; eventhough there is a defect in her aortic valve, it does not seem to be disrupting the function of her heart. We will see him again in one year... Yeah! Ivey's latest weight, as of Wednesday, is 7 lbs 8.3 oz. Yes, she is small for a three month old, but she is slowly gaining weight. All-in-all, the past few days have been physically and mentally grueling, and there will be more to come, but she will presevere.
Ivey also received the long awaited call from the neurologist. There were several areas of concern about the structure of her brain; however, the brain LOOKS normal. He even believes that the corpus collosum is present...this is great news. Let me stress that the brain has the parts, but the FUNCTION IS STILL UNKNOWN. Ivey will be mentally challenged; the question of how severe can only be answered by patience and time. As we have said in the past, her genetic syndrome is very very rare. All other documented children with this syndrome have malformations of the brain and as a result are severly mentally retarded. The miracle here is that Ivey does not have the deformities of her brain. Endless patience, unknown increments of time, lots of love, and Prayer will be her determining factors.
Ivey is a gift from God. Every day she overwhelms and amazes me.
Thank you Dad, Miranda, Mandy and Stacy.
Much Love, Gwen
2 comments:
This is such good news to hear! God is hearing all of the prayers for Ivey and knows that she is in good and loving hands.
Here's another little short sotry from my Dear God book. Hope you enjoy!
Dear God,
Mom says I'm an angel. Does this mean I can fly?
No, it doesn't mean you can fly. But it does mean something that ought to make you feel a hundred feet high. Someone wakes up in the night be sure your legs are still under the blankets. Someone cuddles you close and promises to keep you safe. Someone loves you even when you break the rules. You are one loved little person.
All three of your children are very lucky to have you and Matt as parents. They all receive this unconditinal love.
I will continue to pray.
Mon
Gwen, praise the Lord for a brain that looks good! I understand the joy in that one; when Addison's brain scan sonographer whispered that her brain was "beautiful," I knew that all was okay there. Again, we know the function will probably be impaired, but it's a praise, anyway!
And thank you for lifting her up--we've truly felt the covering of prayer!
I'll continue to update:)
Post a Comment