Hi Everyone-We did travel back to Scottish Rite today to see the pediatric opthamologist, Dr. Pollard. He did confirm what we already know, that Ivey will never have sight. Now we will move on to the next step, but we are not sure of the time frame. Ivey will be able to go through steps to prepare her eyes to eventually have prosthetic eyes... Tomorrow Ivey will travel back to Scottish Rite to visit the Cranio/facial clinic.
As difficult as this is, we are still enjoying our new baby girl. She is wonderful and becoming more content as the days go by. We, family and friends, have started to find a new "normal". We are adjusting to having a nurse in the house to care for Ivey during the nights. I have been very lucky to have my parents here to help with almost anything and everything. For all the heartbreak we are feeling, there is just as much happiness. We have taken on Sundays to be our family day where Knox, Walker and Ivey enjoy our unlimited, undestracted attention.
We are still waiting on the results of Ivey's MRI. The Scottish Rite neurologist has sent the disc to be read by his radiologist. Hopefully, we will have news from this soon. G.
Confessions from the mind of this sleep deprived mom navigating the world of complex medical needs, deafblindness, and special education. And y'all, it may not always be pretty, but it's real, and it's always for the love of Ivey.
Subscribe to:
Post Comments (Atom)
Sibling Secret Sauce
Siblings of kiddos with disabilities are amazing humans walking amongst us. They live a life, most often, in the shadows of their sibling w...
-
It has been 2,190 days. That seems like a lot of days. However, there are some out there who have been doing this thing much longer, say for...
-
Thank you all so much for taking time to share this milestone with our family. It is so great that you all are a part of our lives just as I...
5 comments:
Gwen- Thanks for the update. What a sweet blessing to find your nes normal. I love the Sunday Family Day...and I am sure Knox & Walker do too!
We're still praying for ya'll over here!
Gwen,
I have been praying for you and your family daily. You and Matt are very strong and we all admire the dedication you put into your family. Love always, Mon
Gwen~
Thanks for the update. We have been praying for your family and think of you often. You and Matt are so special!
Sherri, Chris & the boys
Gwen~
Thanks for the update. We have been praying for your family and think of you often. You and Matt are so special!
Sherri, Chris & the boys
Gwen~
Thanks for the update. We have been praying for your family and think of you often. You and Matt are so special!
Sherri, Chris & the boys
Post a Comment