Given that Ivey has a cleft palate that was pretty severe and extended far into her soft palate, even after repair, and years later, it has left her with some precarious cranial and teeth issues. So here we are, back at Scottish Rite doing a little OR time to help alleviate some pain and address a few other odds and ends. And after many years needing a port for immunoglobulin infusions, it has been officially removed. Infusions have been replaced with Sub-Q infusions. So away it goes.
Confessions from the mind of this sleep deprived mom navigating the world of complex medical needs, deafblindness, and special education. And y'all, it may not always be pretty, but it's real, and it's always for the love of Ivey.