Skip to main content

God's Gift in Brothers

I've tried to think of ways to best put these videos into words, but words escape me.  For all the things you see on this sweet little blog, Ivey's personal life, the here and now daily dose, is really non-existent.  You don't really ever see what a real moment, hour or day of her life is really like. How the people in her day-to-day life interact with her.  She is blessed, as are all of us.  We, especially Ivey, are surrounded by amazing people.  Where so often we hear how lucky Ivey is to have us, I'm not so certain in that.  More likely it is the blessing of those who get to chose to be in her life that make her life worth living, give HER value and purpose.  As amazing as she is, it's really those in our lives that are amazing. 

So to give you some background we spent a week this summer with some of our most favorite people in the world.  One, Taylor and Craig were with us, which makes my heart so happy.  Taylor calms me by just being present - I can't begin to tell you the things she does for Ivey's heart...don't even get me started on how much the boys love her, Matt included.  Taylor and Craig complete our little family.  Unfortunately, you won't get a glimpse of them in these videos. 

Two, Ivey's Godfather lives in St. Simons, which completely made my husband's week.  Matt and Greg got to catch up on some lost time.  As for our boys and Ivey this one family lends over three God brothers.  Imagine three more brothers ....  how Susan lives amongst so much testosterone I'll never know.  And as unique as I think my boys are with Ivey, these three boys exceed any description.  They see Ivey as Ivey, a tough, and I mean tenacious, little sister.  They LOVE her.  And unlike most adults ... she doesn't intimidate them in the least..... 

So, when I say Ivey LOVES the water .... Ivey L.O.V.E.S the water, just about as much as she loves her God brothers. 

P.S.  The two moms have managed to go incognito (as usual), always on the other end of the camera. 

Ivey with Cole



Ivey with Brolan









Missing Cole. 

WE LOVE YOU GUYS!!

Comments

Popular posts from this blog

And Sometimes Feeding Your Kiddo Looks Like This...

A simple sentence. No one said it to me in the beginning, but boy did that tube cause a lot of chaos. The NG tube graduated to the G-tube which morphed to a GJ- tube…. A brief history of Ivey's feeding tubes: *The NG tube was in place the first time I ever saw my daughter in the NICU.  My only memory of her without a feeding tube is them placing her in my arms immediately following her birth. *The G-tube, well, that is a story within itself.  That decision did not come lightly.  Another hole in her.  Another decision on our plate, but not really on our plate, it was apparent it was a medical necessity for her survival.  Literally to give her a chance to live.  A permanent decision.  A 5am panic attack in the Scottish Rite elevator that happened to coincide with Dr. Meyers arriving at the hospital at the same time as me.... Our intersection in the elevator set the stage for the years to follow. From that point on, he knew I was a little nuts and a lot...

BEAUTIFUL GREEN EYES........

Sibling Secret Sauce

Siblings of kiddos with disabilities are amazing humans walking amongst us. They live a life, most often, in the shadows of their sibling who simply needs "more". More time. More direct attention. More of more. We have now come to a fork in our road. Our boys are young men, and, our daughter is a young lady. I'll be honest, I was uncertain what life would look like once the boys left this home, once they had their own time, in their own personal sunshine. We found out quickly once Knox left for college his freshman year what that would look like. And then, when Walker left, we knew what life would feel like in their absence. There was too much space. Ivey felt it. We get many compliments about the relationship the boys and Ivey have with one another. Hints here and there that, maybe, Matt and I had some secret recipe to parenting a household with a child that is very medically complex and a very complex communicator. This is what I can tell you - there is no re...