Skip to main content

Challenging the risks or is it risking the challenges?

At the beginning of the summer I met someone who knew about Ivey but they had never met me.  And like many others they have kept up with Ivey through this blog, even though they have never met Ivey in person either, she was someone who knew Ivey as a life force and a miracle in the present.  Upon the meeting, this person quickly assessed me in the living flesh too.  Where I am most noted as being "Ivey's" mother (in most introductions) there is apparently some expectation about who I am because she said,"You are nothing like I expected".  As you can imagine, I am still trying to decipher that little comment.  There are loose ends dangling everywhere off that one. 

No matter the image hanging out there here's what I do know.  I try to give her wings even when fear consumes me.  My husband is exactly the same, which results in two boys having no fear when it comes to their sister.  And I guess we do a pretty good job of pushing fear down in the right moments, all of which results in having friends who see no limits when they look at Ivey -

or then again maybe it has absolutely nothing to do with us at all- just a divine weaver weaving the right people into this child's life - inadvently and graciously into our life.  Maybe it is really all of them teaching us to challenge the risks and risk her challenges, giving us the courage to give her wings. 

She loves riding in boats, but this took her over the top.  My girl loves things that go fast and toss her around like a ragdoll. 

So here's to our friends - who challenge us to challenge the risks -

(I only wish you all could see the enormous smile on that child's beautiful face (and her daddy's)! P.S. the boys had a blast too! )


Andrea said…
That is exactly something that Shep would do with Caroline in a hot minute. It looks like she is having a blast in the arms of her daddy! I love it!
Hex said…
Sounds like fun! :) (Riding in boats.) Risk also leads to learning. (Yes, it'd make me nervous, too!) Amen. All the best to Ivey and family.

Popular posts from this blog

Teeth & A Port

Given that Ivey has a cleft palate that was pretty severe and extended far into her soft palate, even after repair, and years later, it has left her with some precarious cranial and teeth issues.  So here we are, back at Scottish Rite doing a little OR time to help alleviate some pain and address a few other odds and ends.  And after many years needing a port for immunoglobulin infusions, it has been officially removed.  Infusions have been replaced with Sub-Q infusions.  So away it goes.

The Animal Shelter

The final synopsis.  The dogs were loud.  She didn't even want to talk about the cats.  The snake.  That snake was her favorite.  

Does She Talk?

The thing about the term "nonverbal" - it isn't always accurate.  Technically, it's a terrible label.   I always get a little, how should I say this, perturbed when someone calls Ivey 'nonverbal'.  You see, this terminology leads others to assume Ivey can’t communicate.  Oh, she communicates.  Quite well I might add.   My question is it Ivey who is limited because she doesn't speak verbal sentences, or is it the rest of us who are limited because we only pay attention to words spoken verbally?  And, nonverbal always makes me think more along the lines of mute, but if you have hung out with Ivey for any short period of time, she is anything but mute.  Remember there was a time when I could apply the humivent on her trach as an on/off switch.  This came in handy in church.  Well, that was until she figured out how to use her finger to cover the hole... years since  decannulation it's been game on.  Literally.  

The nonverbal box tends to underestimate h…