Skip to main content

The Un-teach-able

There are alot of things that I would love to take credit for - alot. But when it comes down to it, I have absolutely no influence..... None. Notta.

Like this morning, Walker was up first (before Knox and Ivey) and came into Ivey's bedroom where Matt and I were (after changing of the guards with the nurse). Unfortunately it was time to get the day going. So Matt went one direction to get ready for work and I went the other to get uniforms out for school. In the meantime, Walker took Matt's place next to Ivey to keep her company while she slept and while I got the clothes.

This is what I came back to at 6:30 am this morning - Ivey still fast asleep with Walker sporadically reading what he could to her from the Lorax.
The photos I snuck before he realized it -
And this...Ivey's clothes out for the day - complements of Walker.

One black and white striped shirt.
One pair of polka-dotted pants.
One pair of socks.
Without fail- she wore this outfit to school.
She was sound asleep, but I hope his voice sent her sweet dreams. I hope she felt him near her and drifted into a deeper sleep full of security and comfort. I hope that these moments carry on throughout their lives together, always, that they forever remember these times. Both of them.
But without utter fail, these are qualities you just can't teach - I can't teach - these are qualities of the heart.


What a beautiful post... what a beautiful boy... What a beautiful moment you captured... Thanks for sharing x
Rhonda Miller said…
What a loving big brother. How sweet.
Zoey's mom said…
Another incredible little guy you have there Gwen.Really and truly incredible.

Popular posts from this blog

Teeth & A Port

Given that Ivey has a cleft palate that was pretty severe and extended far into her soft palate, even after repair, and years later, it has left her with some precarious cranial and teeth issues.  So here we are, back at Scottish Rite doing a little OR time to help alleviate some pain and address a few other odds and ends.  And after many years needing a port for immunoglobulin infusions, it has been officially removed.  Infusions have been replaced with Sub-Q infusions.  So away it goes.

The Animal Shelter

The final synopsis.  The dogs were loud.  She didn't even want to talk about the cats.  The snake.  That snake was her favorite.  

Does She Talk?

The thing about the term "nonverbal" - it isn't always accurate.  Technically, it's a terrible label.   I always get a little, how should I say this, perturbed when someone calls Ivey 'nonverbal'.  You see, this terminology leads others to assume Ivey can’t communicate.  Oh, she communicates.  Quite well I might add.   My question is it Ivey who is limited because she doesn't speak verbal sentences, or is it the rest of us who are limited because we only pay attention to words spoken verbally?  And, nonverbal always makes me think more along the lines of mute, but if you have hung out with Ivey for any short period of time, she is anything but mute.  Remember there was a time when I could apply the humivent on her trach as an on/off switch.  This came in handy in church.  Well, that was until she figured out how to use her finger to cover the hole... years since  decannulation it's been game on.  Literally.  

The nonverbal box tends to underestimate h…