Finally on Day 11 Ivey made it through an entire day without a seizure. Yippee!!
The past 11 days have been the extreme of extremes. We know she has sinusitus - agian. It is a monthly occurance and battle. Due to a debunk immune system and abnormal facial structure it is a 'normal' for her. These things send her spiraling -
I have to tell our medical staff how grateful we are for having them, and how thankful we are for trying to make the back and forth of communication simple and for trusting our judgement as much as we trust theirs. It has been over a week and a half of meds and sleepless nights and the eagle eye of monitoring for the slightest hiccup in her behavior to signal she just jumped to the next level- I think we can exhale today- she's back.
Despite a seizure marathon, Ivey has been at school each day, working hard - keeping us busy here at home trying to stand (see video below), making the most of ballet classes (pictures coming soon) and even sitting in the bleachers cheering on the girls Varsity basketball team(Go Tigers)! Extreme of the extreme. But I don't expect anything less from my girl with the mostest.
Sibling Secret Sauce
Siblings of kiddos with disabilities are amazing humans walking amongst us. They live a life, most often, in the shadows of their sibling w...
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Siblings of kiddos with disabilities are amazing humans walking amongst us. They live a life, most often, in the shadows of their sibling w...
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Ivey Elizabeth Sirmans was born Tuesday April, 25th at 5:26 a.m. She weighed 5 lbs 11 oz and is 17 inches long. She has beautiful long finge...
1 comment:
First,I missed the change in header quotes when I came yesterday.Sad we don't have that common quote bond anymore but really,really loving the new one.It is just perfect.
so sorry about the seizure extreme as of late,but i know you all,especially Ivey,are pushing through it with the same grace and dignity as always.
Cannot wait for the ballet pictures.You know I might just cry,don't you?
Lastly,I wanted to tel you about a give away going on at marissasbunny.com,her family and her dad's bosses are giving 5 iPads away,based on merit only,no donation just based on story and need and I really think you should email Ivey's story and try for one.I am totally clueless about all the apps and what might be applicable to Miss Ivey but I can only imagine it would be a super great tool for her and you all.Let me know id you cant,find the blog.It is on my sidebar under Bunny Blog.
Take care my friend and love to you all.
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