Saturday - Game day battle....

Ivey was discharged yesterday! She had a great night, Mrs. Stephanie was here --- so we all had sleep.

She looks much, much better today. The swelling has gone down a little and she is in a GREAT mood. Tylenol is holding her, which amazes me.

The boys came home this morning and seemed pretty non-phased by Ivey and her swollen and bruised appearance. A good thing, I think. Sometimes it takes them a little time. I did take them for some hot-chocolate and they voiced a few questions, mainly concerning the incision and stitches... and went on their way. And now they are getting down to business with the Georgia - Auburn game.

Settling down from an emotional roller coaster is always hard - but we do it- together .....we are truly blessed by wonderful family and friends. One of those friends gave the blood that went to Ivey during her transfusion during the surgery.....And now Ivey now has some Auburn blood flowing through her veins. Literally. So I wonder if that blood is urging her to let out a little 'war eagle'?

Of course NOT, what was I thinking..... blood is RED....

Go DAWGS!!

And Sometimes Feeding Your Kiddo Looks Like This...

A simple sentence. No one said it to me in the beginning, but boy did that tube cause a lot of chaos. The NG tube graduated to the G-tube which morphed to a GJ- tube…. A brief history of Ivey's feeding tubes: *The NG tube was in place the first time I ever saw my daughter in the NICU. My only memory of her without a feeding tube is them placing her in my arms immediately following her birth. *The G-tube, well, that is a story within itself. That decision did not come lightly. Another hole in her. Another decision on our plate, but not really on our plate, it was apparent it was a medical necessity for her survival. Literally to give her a chance to live. A permanent decision. A 5am panic attack in the Scottish Rite elevator that happened to coincide with Dr. Meyers arriving at the hospital at the same time as me.... Our intersection in the elevator set the stage for the years to follow. From that point on, he knew I was a little nuts and a lot...

Sibling Secret Sauce

Siblings of kiddos with disabilities are amazing humans walking amongst us. They live a life, most often, in the shadows of their sibling who simply needs "more". More time. More direct attention. More of more. We have now come to a fork in our road. Our boys are young men, and, our daughter is a young lady. I'll be honest, I was uncertain what life would look like once the boys left this home, once they had their own time, in their own personal sunshine. We found out quickly once Knox left for college his freshman year what that would look like. And then, when Walker left, we knew what life would feel like in their absence. There was too much space. Ivey felt it. We get many compliments about the relationship the boys and Ivey have with one another. Hints here and there that, maybe, Matt and I had some secret recipe to parenting a household with a child that is very medically complex and a very complex communicator. This is what I can tell you - there is no re...

For the Love of Ivey

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