The Gift of Giving

Tis the season to give.

If you aren't sure of a Cause that you would like to make a contribution to this year, here are three that are near and dear to our hearts here in the Sirmans' house. I will provide links for you to follow +

*Babylegs*
This is happening in honor of our sweet kindred spirit Gavin - who passed away just before Thanksgiving. Gavin's mom, Karen, is making sure that the children in Dupont Hospital are warm and cozy this holiday. Babylegs are legwarms for children. They are especially helpful for kiddos who are continually connected to tubes - where pants are difficult to keep on and little legs get cool. Most of you might remember me cutting wholes in all of Ivey's onesies because of this problem.

Gavin Owens: www.gavinowens.com/2009/11/babylegs-news-flash.html

You can also have Babylegs sent directly to Karen and she will deliver them to Dupont.

Karen Owens
P.O. Box 985
Boyertown, PA 19512

*Scottish Rite Children's Hopital*
Our home away from home. The hospital is able to provide excellent care to children with the help of donations from the community - this is so near and directly dear to our hearts!

Scottish Rite www.choa.org/give

Children's Healthcare of Atlanta Foundation
1687 Tullie Circle
Atlanta, GA 30329

*Center for the Visually Impaired*
The CVI is in Atlanta and supports persons who are blind or visually impaired. This is such a great and incredible resource for the visually impaired community. It is truly an amazing place full of amazing people. We are so proud of its BEGIN program. The CVI also has an incredible store with items for blind/vi people. It is called the Visability Store. Check it out!

Center for the Visually Impaired. http://www.cviatlanta.org/

I hope this gives you all something to consider this holiday season - all of these causes are to help others who walk through this world a little differently than the rest of us - but they make this world worth living in - because of all of these causes, Ivey's world is a better place to live in +

Comments

And Sometimes Feeding Your Kiddo Looks Like This...

A simple sentence. No one said it to me in the beginning, but boy did that tube cause a lot of chaos. The NG tube graduated to the G-tube which morphed to a GJ- tube…. A brief history of Ivey's feeding tubes: *The NG tube was in place the first time I ever saw my daughter in the NICU. My only memory of her without a feeding tube is them placing her in my arms immediately following her birth. *The G-tube, well, that is a story within itself. That decision did not come lightly. Another hole in her. Another decision on our plate, but not really on our plate, it was apparent it was a medical necessity for her survival. Literally to give her a chance to live. A permanent decision. A 5am panic attack in the Scottish Rite elevator that happened to coincide with Dr. Meyers arriving at the hospital at the same time as me.... Our intersection in the elevator set the stage for the years to follow. From that point on, he knew I was a little nuts and a lot...

BEAUTIFUL GREEN EYES........

Sibling Secret Sauce

Siblings of kiddos with disabilities are amazing humans walking amongst us. They live a life, most often, in the shadows of their sibling who simply needs "more". More time. More direct attention. More of more. We have now come to a fork in our road. Our boys are young men, and, our daughter is a young lady. I'll be honest, I was uncertain what life would look like once the boys left this home, once they had their own time, in their own personal sunshine. We found out quickly once Knox left for college his freshman year what that would look like. And then, when Walker left, we knew what life would feel like in their absence. There was too much space. Ivey felt it. We get many compliments about the relationship the boys and Ivey have with one another. Hints here and there that, maybe, Matt and I had some secret recipe to parenting a household with a child that is very medically complex and a very complex communicator. This is what I can tell you - there is no re...

For the Love of Ivey

Search This Blog