Skip to main content

How they handle her

Often I am asked 'How are the boys with her'?

They are big brothers. She is just a little sister. They make each other smile.

Sorry the video is dark, but they were playing in the bunk beds in the shadows. You can't even see Walker, but he's in there too. It may be hard to see their faces, but you can hear it - their smiles - in their voices!

For some reason the video keeps stopping. If the video stops, just tap the little button that slides and it will keep moving. Oh, well.


Tink said…
How sweet, they play so nice with her.You can tell how much she love's it.
Awwwwwwwwwwwww. Brothers getting their hair pulled LOL. Ha ha go for it Ivey. What a cute video and it truly captures how much her brothers love her and how much she enjoys having her brothers smother her with love and ksises.
Shannon in Austin
Anonymous said…
This video is SO cute! Ivey is so blessed to have two wonderful brothers that love to play with her. Looks like the girl can hold her own though! Go Ivey...Grab those ears!!

Jill & Ella
Gosh, looks like fun! What good big brothers!
Ashley said…

What joy this little piece of your "life" gave to my heart. Thank you for sharing the journey with us. How blessed you are! Trish

Popular posts from this blog

The Price of Good Intentions

Last night I got my girl bathed and dressed for bed.  Our usual nightly routine.  Then we began our other routine in prep for the morning hustle to get out the door for a 6 am arrival time at Day Surgery.  The routine is necessary.  We discuss what will happen to her once her surgery begins.  Who will be with her.  Possible things she might feel and hear.  I explain that they may not know what she is requesting through her attempts to sign or her sounds as she comes out of anesthesia  and that she may not know where she is, but mom and dad will be close by, just waiting to get to her.  I reassure her that even though she will not know the people she is with during surgery, they care for her deeply and have her best interest at heart.  They will be as gentle as possible. And as always, this is the point where I cry.  I apologize to her for making decisions on her behalf, all based on the good intentions of doing what is best for her, permitting only what is deemed 'medically necess…

Does She Talk?

The thing about the term "nonverbal" - it isn't always accurate.  Technically, it's a terrible label.   I always get a little, how should I say this, perturbed when someone calls Ivey 'nonverbal'.  You see, this terminology leads others to assume Ivey can’t communicate.  Oh, she communicates.  Quite well I might add.   My question is it Ivey who is limited because she doesn't speak verbal sentences, or is it the rest of us who are limited because we only pay attention to words spoken verbally?  And, nonverbal always makes me think more along the lines of mute, but if you have hung out with Ivey for any short period of time, she is anything but mute.  Remember there was a time when I could apply the humivent on her trach as an on/off switch.  This came in handy in church.  Well, that was until she figured out how to use her finger to cover the hole... years since  decannulation it's been game on.  Literally.  

The nonverbal box tends to underestimate h…