Skip to main content

How they handle her

Often I am asked 'How are the boys with her'?

They are big brothers. She is just a little sister. They make each other smile.

Sorry the video is dark, but they were playing in the bunk beds in the shadows. You can't even see Walker, but he's in there too. It may be hard to see their faces, but you can hear it - their smiles - in their voices!

For some reason the video keeps stopping. If the video stops, just tap the little button that slides and it will keep moving. Oh, well.

Comments

Tink said…
How sweet, they play so nice with her.You can tell how much she love's it.
Awwwwwwwwwwwww. Brothers getting their hair pulled LOL. Ha ha go for it Ivey. What a cute video and it truly captures how much her brothers love her and how much she enjoys having her brothers smother her with love and ksises.
Shannon in Austin
Anonymous said…
This video is SO cute! Ivey is so blessed to have two wonderful brothers that love to play with her. Looks like the girl can hold her own though! Go Ivey...Grab those ears!!

Jill & Ella
Gosh, looks like fun! What good big brothers!
Ashley said…
Gwen,

What joy this little piece of your "life" gave to my heart. Thank you for sharing the journey with us. How blessed you are! Trish

Popular posts from this blog

Teeth & A Port

Given that Ivey has a cleft palate that was pretty severe and extended far into her soft palate, even after repair, and years later, it has left her with some precarious cranial and teeth issues.  So here we are, back at Scottish Rite doing a little OR time to help alleviate some pain and address a few other odds and ends.  And after many years needing a port for immunoglobulin infusions, it has been officially removed.  Infusions have been replaced with Sub-Q infusions.  So away it goes.





The Animal Shelter

The final synopsis.  The dogs were loud.  She didn't even want to talk about the cats.  The snake.  That snake was her favorite.  



Does She Talk?

The thing about the term "nonverbal" - it isn't always accurate.  Technically, it's a terrible label.   I always get a little, how should I say this, perturbed when someone calls Ivey 'nonverbal'.  You see, this terminology leads others to assume Ivey can’t communicate.  Oh, she communicates.  Quite well I might add.   My question is it Ivey who is limited because she doesn't speak verbal sentences, or is it the rest of us who are limited because we only pay attention to words spoken verbally?  And, nonverbal always makes me think more along the lines of mute, but if you have hung out with Ivey for any short period of time, she is anything but mute.  Remember there was a time when I could apply the humivent on her trach as an on/off switch.  This came in handy in church.  Well, that was until she figured out how to use her finger to cover the hole... years since  decannulation it's been game on.  Literally.  

The nonverbal box tends to underestimate h…