Doesn't Ivey look precious in her new shirt! Thank you :bitty braille: for thinking of Ivey. Thank you to 5 Minutes for mom for making the connection.
Sunday, September 23, 2007
bitty braille
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Ivey's League Link
Learn to sign with Ivey
Meet Ivey
- Just Another Ordinary Miracle
- I was born with a rare genetic syndrome due to a partial deletion of my 21st chromosome. I have anophthalmia, which means I was born without my eyes. Therefore, I am blind and wear beautiful green prosthetic eyes. I do not hear very well so I wear hearing aids. I eat through a g-j feeding tube in my stomach. I battle a seizure disorder, but do not let it slow me down. I have microcephaly and a deformity to my heart. My cleft lip and palate have been repaired and my trach has been removed. I have triumphed over many obstacles, yet have many more to face. God has granted me many blessings. This is the story of my life and my family's new "normal".
How to better teach my daughter with vision and hearing loss
Parent Resources For Vision/Hearing Impairments
- Project SPARKLE
- Parent To Parent of Georgia
- Microphthalmia Anophthalmia Parent Support (MAPS)
- Lekotek of Georgia
- Individuals with Disabilities Education Act
- IDEA Partnership
- Hands and Voices
- Georgia Sensory Assistance Project/Georgia Deafblind Project
- Georgia PINES
- Center For The Visually Impaired (CVI)
- American Foundation for the Blind
- American Association of the Deafblind
Just Ordinary Us
- Green Eyed Girl (6)
- In Pure Ivey Fashion (10)
- Ivey was Trached (16)
- Ivey's Baptism (2)
- Ivey's Decanulation (4)
- Pictures (104)
- Preschool (10)
- Sign With Ivey (1)
- So This Is My New Normal (52)
- Special Sibling Stories (23)
- Steps To Miracles (62)
- Tales Of A Normal Family...in our world anyways (15)
- Video of Ivey - Learn to do WITH not FOR (2)
- Where did those eyes go? (2)
Ivey's Medical Library
Sibs R Special 2
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Once Upon A Time In A Place Far Far Away
a small world after all
2 comments:
she's so precious! i miss that sound!
how old is ivey (my daughter's middle name is also elizabeth) ?
SHE LOOKS FABULOUS!!! SO HAPPY FOR YOU!!! I LOVE THAT IT HAS HER NAME ON IT.
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