11.02.2006

TICU.....

I am learning all sorts of abbreviations these days. For example, TICU is the technology-dependant intensive care unit. Wednesday, the nurses and doctors put the word out that Ivey was heading there. Miranda and I sat trying to decide what the ‘T’ in 'tick-u' stood for. We concluded that it stood for ‘Temporary’, which sounded pretty optimistic to both of us. In my phone call to Matt to tell him the good news about Ivey’s move, he informed me of the correct meaning, technology-dependant.

What more could you expect from two blondes brain-storming anyways?

So…Ivey has moved one floor down - one floor closer to the exit of the hospital - to TICU, a step-down unit. She is no longer on the respirator. Our sweet baby girl is breathing all on her own through her new trach. Ivey is connected to a HTC, another abbreviation which stands for humidified trach collar. A hose extending from a humidifier to her trach supplies moisture to keep her airway from drying. Since she no longer breathes through her mouth this is necessary. Our mouths, which are pretty humid from saliva and body heat, are our humidifiers.

It is heartbreaking to watch Ivey adjust to her new trach. She no longer makes sound when she cries. Air does not pass across her vocal cords, thus, no sound. Ivey is confused and frustrated. She is learning how to breathe and cough - all things which are natural instinct to us. Ivey has dropped weight from 10 pounds back down to 8 pounds. Earlier in the week a doctor looked at me and said in a very sincere and comforting voice, “She is a fragile little thing”. All I could do was nod. Instinctively, I wanted to look him dead in the eye and tell him that she might just be one of the strongest people that either one of us have ever laid eyes upon in a nice petite package. But, from his voice, he already knew that. It is amazing to see her and know that she is fragile and susceptible to medical trivia; however, I constantly am amazed by her endurance and perseverance.

We have not taken the boys to see Ivey - yet. As open as we are with the boys, it is not time for them to see her. She needs adjustment time first. I do not think there would be a way to explain to them her response to this new trach. She needs plenty of time for recovery and no chance for infection from two tiny little germ carriers. Even so, we have been prepping the boys for the first visit with their baby sister. Knox is excited that she now has another ‘hole in her nose’ and her lip ‘fixed’ and he correlates my explanation of her ‘trach with a collar’ to a necklace.

Matt and I are grateful for everyone who has offered a helping hand and support throughout this past week. Finally, seven days have pasted since we set off for Scottish Rite for an easy lip/nose repair. It has felt like an eternity. We have been able to spend some time with family in Atlanta. Thank you to everyone who has sent a card or some type of goody. Encouragement is what we need right now. And on a lighter note, Matt and I have finally resolved that our cell phones are not working well in the hospital, probably due to interference from all of the equipment. After three days of Matt saying, “I have called you, left messages and you are not answering the phone”, which is very frustrating considering he can not just stop in to check on things, the same thing happened to him today while he stayed with Ivey. Once outside of the hospital, missed calls appear out of nowhere. Leave a message we will return our calls, that is if the mailbox is not full.

This great story of Life is unfolding before our very eyes. The apprehension of what is yet to be written is almost suffocating and then in a moment the fear is gone. Now a new chapter of this fairytale with our baby girl and sweet baby sister is unveiling its self. We just have to wait to see what she writes.

Much Love,

Gwen

9 comments:

The Rutland Family said...

We have NO doubt that her story will be beautiful! We can't wait to read it!
God bless you all!
Keep the Faith!
Jud and Pam

Jennifer said...

I am sitting here with tears in my eyes, cupping my coffee and nodding "hmmmm." There is so much BEAUTY in Ivey's life. In her story, in how it is challenging all of us and of course in her sweet face.
I was so happy to see her sleeping peacefully all wrapped up in pink, Wednesday.
Hooray for step down. Thank you for sharing this story so eloquently.
Ivey IS the strongest little fragile thing I have ever met.
You are never far from our thoughts!

Willingham13 said...

We know that are prayers have been heard. Ivey is onse step closer to the exit and we will continue to pray for her and your family.

I hope you enjoyed the basket of goodies. I wish that there was something more we could do. If there is please do not hesitate to call.

You are a such an inspiration to me. Every day I thank God that you are part of my family and I have been given the chance to watch you and your family grow.

Sending all of my love,
Mon

Blair's Mom & Dad said...

Yeah for the TICU!! You are so right that you are one step closer to getting home. Ivey, you are such a little fighter. God bless your sweeet little self. We cannot wait to see you again soon. As usual, we continue to think about y'all and pray for y'all. We love y'all- S,K & B

Lei said...

I don;t know how I got lucky enough to connect with you, but your story is inspirational. Thank you for visiting my blog and thank you for sharing this powerful story of triumph! If you don;t mind, I'd like to put your blog on my sidebar, with other blogs that motivate me. :)

Sarah said...

I'm reading this from TN, on a trip to see family--I had to check in with you and see how Ivey is doing! I'm still praying, knowing how right you are; she's WAY stronger than most of us! Her tiny size is not an indicator or her might:) And she'll gain those lost pounds back again, and then some!

Sending hugs from TN tonight,
Love
Sarah

Ashley said...

Just wanted to let you know you and your sweet Ivey are in my thoughts and prayers tonight as I watch my little Ashley sleep. I know how strong your little one is and yet so fragile at the same time. He has given our daughters a strength that few will ever know or understand. I am thanking Him for your move today. Take care. Ashley's Mommy

Katherine@Raising Five said...

Still praying here. Yes, one step closer. Love her perseverance in spite of her "petite package!"

PS - I added you to my blogroll...hope that's okay.

Barbie @ Mamaology said...

Sweet Ivey IS so strong! That Dr. probably has no idea how many are praying for her and giving her support that way. She is a fighter. I'm so sorry for how hard it must be to see her adjust to all this. You are very strong too. Your faith is inspiring! May God bless sweet Ivey and your family.

Sibling Secret Sauce

Siblings of kiddos with disabilities are amazing humans walking amongst us. They live a life, most often, in the shadows of their sibling w...