Time with Ivey and two little boys has become more complex, more relaxing, full of fear and estatic with joy in just a short three weeks. And right this moment, all three are sleeping peacefully and there is a moment to sit and breathe.
I am here at the hospital with Ivey watching her sleep yet, still wishing that I could stand in the boys' doorway to watch them sleep.
Next week on the 25th, Ivey will be 7 months old. Officially, she will have spent 2 months of her 7 in a hospital. Each day that has passed in those two months, Knox and Walker have whole heartedly stepped through each day with her. Not a day has gone by that they lift their heads from their pillows, bare feet hitting the hardwoods and ask where is Ivey, where is Daddy? And instinctively they answer their own question - at Scot White with Ivey. And in return, Matt says the same is done on the days I am here with Ivey, except they ask about their Momma. Not a day has passed that I don't ask, not necessarily to anyone inparticular, why these babies should carry such heavy hearts and live years past their age.
Now the calendar is set that Ivey will go home sooner than later and life will take on a new meaning and a new schedule. In the days that are to come, I pray that they will be sleeping babies whom have sweet dreams and wakeup to an untarnished world.
I remember when Knox was first born, the first baby. For many, everything that I did with him was chalked up to being an inexperienced mom, a first time mom. I have always wondered exactly where in the formula do you stop being a first time mom and become an experienced mom? To me, being a mom for the first time or for the third does not make me a better mom. Multiple children does not dignify or qualify that I am a good mother.
Is it possible to stretch across the miles and ensure three tiny people that they are special and important, loved and respected, unique and beautiful? Will they see that they are all loved equally all in their own unique way of needing to be loved? Will my children rest peacefully at night and feel secure in their surroundings, no matter where they are? Will they always feel protected and safe, even in our world of uncertainty? These are questions that are not special to our circumstance. These are questions that most mothers and fathers ask of themselves.
Tonight I left the hospital and went to dinner - alone. My friend Mandy came here and sat with Ivey while I left the hospital. Solitude is a wonderful thing at times. The past three weeks have been full. The past three days have been filled with a very awake 6 month old and learning to address her new needs and how to operate her new equipment. Down time is very limited. Mastering new skills takes concentration, when we go home all eyes will look this way to know what to do. Tomorrow it is planned that I will begin the rooming-in process so that Ivey can come home. I must log in 24 approved hours. Then, Matt will log in his own separate 24 hours. So do not be alarmed if we do not answer phones and visiting is very limited. While rooming-in, the nurses and respiratory therapists will step back and we will be in control of all feedings, medications, therapies, trach care, PEG care and other day-to-day needs of a baby.
So, tonight as I sat alone at dinner, something that is very against my normal mode of comfort, I basked in the moment. I sat with thoughts and emotions in my mind and could actually think over what I should do with each. Initially my thoughts wondered to life in the next year. Exactly how tough will it be on all of us? Then I reminded myself to not go down a road we may or may not travel, be patient and let things happen on their own.
Then the picture became clear.
I was sitting enjoying time alone while a friend put time aside to travel to Atlanta to sit with my daughter, without me asking. Another friend took charge of my life, voluntarily, to help love my children, make life easier, without me asking. Another has scheduled meals for my family, without me asking, despite her own busy schedule. Another has provided a place for my family to stay while here in Atlanta and carpooled the boys to and from preschool, all without me asking. Another has become Ivey's family, caring for her just like a mother, without me ever asking. I have walked into my home on more than one occassion and found groceries when we have been in the hospital and shopping almost impossible, all without me asking. Others have traveled the road here for doctors appointments, without me asking. Our circle is infinite and full of love. No matter what is to come, our family will not go at it alone. We have a wonderful family, but I marvel at the family that chooses us, our friends. I have watched much different senarios from my seat here in the hospital. Tonight I found myself sitting wondering where in Life did I become so lucky?
I pray my babies will sleep well tonight. I pray they feel the love that is surrounding them across the miles from here and from their family of friends who have chosen to love them. So, I have answered my own concerns. A mother is only as strong as the friends she keeps. I am a good mother because of the women who choose to surround my family. My children will know the love I have for them because they witness, on a daily basis, the bond between friends. After a good night sleep, the sun will shine down on our children tomorrow and they will feel an unconditional love that can only be found amongst our friends, our family.
Confessions from the mind of this sleep deprived mom navigating the world of complex medical needs, deafblindness, and special education. And y'all, it may not always be pretty, but it's real, and it's always for the love of Ivey.
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9 comments:
Its a wonderful yet heart gripping situation. I too remember the love and unconditional friendships while Emma has been in ICU over the last 5 years, and every time you realize again how much you really have been blessed.
I believe that God has wrapped his hands around you and your family, and He has put people in your life for this exact moment. He knew long before today what your families needs would be and he placed those people in your life for this exact reason.
He may not fix our circumnstances but He never leaves us alone in them.
You and your beautiful family are in my prayers... from a mom who has been there and continues to walk that road, please know that you arent alone.
Heather
Deep thoughts. I can't help but believe your children will all grow up knowing they are secure and deeply loved certainly by you & Matt--but also by this committed extended family as well. How blessed!
P.S. Your new design looks great.
Beautifully put! I too can't help but think that your children must feel safe and secure with parents like they have. And ultimately that you are teaching them about the Greatest Parent, Jesus. Being a mother IS very complex! I sure feel like I have learned A LOT from you. Thank you for your open heart. May God richly bless each of you today!
I struggle with the same questions about my child (soon to be children), too! I think we would not be good mothers if we didn't.
I am glad that you were able to go to dinner by yourself. Sometimes there is nothing finer than a moment of solitude. It gives our brains the chance to clear out the cobwebs. No matter what I know that even looking in on your situation as an outside, you children definitely know that they are loved.
You have had a very hard road to travel, but I have always said two things:
1. God never gives us more than we can handle.
2. What doesn't kill us will only make us stronger.
I know that God is smiling down on your family right now. Thankfully, he has blessed you with a wonderful circle of friends.
Okay, I just have one thing to say. . .
BEAUTIFUL
Your words, your thoughts, and the new look for your website!!! All are beautiful!!
I am so glad that you got to have a little time alone. That can be so refreshing. . . I am so thankful for your sweet friends.
I will be praying for you. I think I told you that I was a pediatric nurse (before my children). And, I know how much you have to learn. But, you will learn it all and feel very comfortable with it. It will become second nature to you. I always admired the moms who were so skilled in their children's care. I am so proud of you!
May God bless your sweet family! Glad to hear you will be going home soon!!!
I love your new look here! How would you describe it to Ivey? Peaceful, serene, feminine, graceful.
I love that thought - "a mother is only as strong as the friends she keeps." That has been very true in my life. Seems I've found my best friends in life during my times of greatest need - the times when I absolutely could not reciprocate. Those are the true ones, expecting nothing in return, and you are blessed!
Your boys are definitely witnessing "mother love" from lots of angles! Their concept of "family" will probably include lots of adopted aunts and uncles!
Gwen, I've loved all of your posts, but this one is my favorite so far. What a beautiful essay on the "family of friends," as you put it! Chris and I have experienced the same thing with ours, and it makes life easier to walk.
I'm so excited that you're going home soon; know that we continue to pray for you here in TX!!
I'd love to put a praying for Ivey link on my blog. (I just no nothing about linking or computers.) :-) I saw Jen's on Lots of Scotts. Very sweet. You are in my prayers.
I loved this post, but that is nothing new because I love all of your posts!! We just wanted you to know that we are hoping that you and Matt are able to get your 24 hrs in each so that y'all can come home!! We love y'all!! S, K & B!!
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