Today Ivey went into the operating room for surgery at 7:30 am. Within 20 minutes, the plans for the day changed. The surgery team found that Ivey's airway was unattainable. A deformity of Ivey's airway was detected, something that we were unaware of until now. Therefore, the primary surgery for the day was to perform a trachaeotomy. After the trachea was inserted, the craniofacial surgeon did elect to perform her lip surgery. She also received tubes in her ears. Ivey now has a sweet complete nose and mouth.
Currently, Ivey is in the PICU here at Scottish Rite (Children's Health Care of Atlanta). She is under heavy sedation, a drug has also been administered to paralyze her tiny little body, along with this she is receiving medication/antibiotics. Sedating and paralyzing Ivey will ensure that the trachea will heal properly. She is also on a respirator. Ivey will remain in this condition for one week. The physicians indicate that Ivey will be here in the PICU for at least two weeks. The trachea will be temporary; however, it will remain in her for months. This is to help with the surgeries that we know are in her future.
The physicians have indicated that the issue with Ivey's airway will need surgery. The surgery to correct this will occur months from now after she has some growing time.
Please keep Ivey in your prayers tonight and for the next few weeks. Knox and Walker will need them too. Ivey's stay in the hospital was very tough on the boys while Ivey was in the NICU after her birth. This will be much more demanding on them. The blessings of our small town will be needed now more than ever.
Much Love+
Gwen
Confessions from the mind of this sleep deprived mom navigating the world of complex medical needs, deafblindness, and special education. And y'all, it may not always be pretty, but it's real, and it's always for the love of Ivey.
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6 comments:
OH Gwen, I'm so happy to hear that Ivey is through her surgery. She will be in my prayers daily. So will your family. May God bless Ivey to heal from all the different aspects of her surgery and May you and your family have peace and much support through the next few weeks.
Oh, Gwen, I'm so sorry things didn't go as planned. What a long day for you all. It's great that the dr. was able to do the lip surgery--that's one surgery down! Our family continues to pray daily for you; thanks for posting tonight, so we know specifically what to pray for. Sending much love, Sarah
Gwen- I thought of ya'll all day too. The rain reminded me of "showers of blessings" on you all. I am praying that the next 14 days will pass peacefully and quickly and bring much healing.
Congrats on getting this one under your belt!
I am so glad that you gave us an update. Ivey and the rest of your family will be in my prayers. I am sure that everything happens for a reason and finding the breathing issue now, will help in the future. Please keep us posted.
Hugs to Ivey!
You are all in my prayers, and I am so happy to hear that sweet Iveys face is now complete! I pray for you all daily and wish that I lived closer, I have been right where you are with hospitals, and they can be overwhelming.
Know that you and your family are covered in prayer for the next two weekss :)
Be Blessed,
Heather
Gwen~We wanted you all to know that you and your entire family are in our prayers. God is in control and will carry you all through this and the surgeries to come.
Godspeed!
Jud and Pam
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