Sunday Ivey attended her first service at our church, St. Peter's Epsicopal. I do believe it was one of our more magical moments. She made it through the service with minimal fussing. (Or from the parents of three, Matt and I thought it was minimal.) She seemed to enjoy the music and Father Ard's voice. Ivey cooed through them both. At moments, it seemed like she was sending out her acknowledgement of what was being said. It was almost impossible to hold back tears as I held her and she accepted her first communion in St. Peter's. It was even more overwhelming to pray aloud for her during the service along with the other members of our congregation. I think she knew her name was being spoken. This was Ivey's first time out, with the exception of hospitals and a few lunches or dinners with friends. Ivey has been held so closely in the hearts of our church, we wanted her first time out to be in the confidence of St. Peter's.
A simple sentence. No one said it to me in the beginning, but boy did that tube cause a lot of chaos. The NG tube graduated to the G-tube which morphed to a GJ- tube…. A brief history of Ivey's feeding tubes: *The NG tube was in place the first time I ever saw my daughter in the NICU. My only memory of her without a feeding tube is them placing her in my arms immediately following her birth. *The G-tube, well, that is a story within itself. That decision did not come lightly. Another hole in her. Another decision on our plate, but not really on our plate, it was apparent it was a medical necessity for her survival. Literally to give her a chance to live. A permanent decision. A 5am panic attack in the Scottish Rite elevator that happened to coincide with Dr. Meyers arriving at the hospital at the same time as me.... Our intersection in the elevator set the stage for the years to follow. From that point on, he knew I was a little nuts and a lot...
Comments