People ask me all the time how they can help. Until now, we were not sure how to respond because each day was so different. Now that Ivey has seen all of the specialist and is starting round two with most of them, we now know what to expect. Here are some things that can help us out tremendously. Most of you know that Gwen is not allowed to drive alone with Ivey. Someone else must also be in the car to help watch Ivey. So if anyone has some spare time that they could ride to the store or run errands with Gwen, it would allow her to get out of the house a little bit.
We still can not leave Ivey unless she is with a nurse or someone trained on how to take care of her. That affects Gwen much more than me because I get to go to work each day. Dropping by just to say “hello” or a phone call to give Gwen a chance to have a conversation with another adult is also a big help.
The meals have been a life saver. Not only has it helped make life easier, the food has been fantastic. While growing up, we always heard it takes a village to raise a child. Our children have already started to learn that lesson. We are just extremely fortunate to have so many great people in our village to help take care of Knox, Walker, and Ivey. Thank you for everything!!!
Matt
2 comments:
Matt, Thanks for the latest update. You do not know me but God has put you in my path so to speak through your blog. God is doing a great thing in this bloggy world! Sometimes it feels as if I can do nothing. absolutely nothing. outside of caring for my own large, sometimes overwhelming family (except the greatest thing of all, which is pray).
You and yours are now on my prayer list. I fully understand the "tied down" feeling of always needing an extra trained person with you in order to do the simpliest of things. We had a preeemie with a very heavy heart monitor (and a very short 9 foot cord) for 6 months who struggled to stay alive each time she was fed ~ and even a bathroom break was a big deal. so, again, I now know why God led me to your blog! I can understand a tinsy bit of what you and your wife are living with each day and now I can pray specifically for those extra hands and moments of freedom so desperately needed some days.
Ivey has a special place here in my heart. May her perfectly formed little brain and her less than perfectly formed other little parts all combine to bring you incredible joy in one of God's most special of gifts to you, a daughter.
Gwen and Matt,
My work schedule is flexible and allows me to take a long lunch if necessary. Please do not hesitate to contact me to help run errands through the week. I can be yours on Saturday and Sundays- just let me know.
It was good to see Knox and Walker on Saturday.
Love,
Mon
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