Skip to main content

Fighting bordom at the doctor.............
Posted by Picasa

Comments

Heather said…
You do what you got to do and with those to little guys around,I am certain there is never a dull moment.Something about that glint in there eyes!

Zoey loves her Oballs... perfect for little hands aren't they.

Love to.Hope you all are well.

Love the Three Billy Goats Gruff pictures and the boys solo shot.all beautiful.

As I typed in word verification,the first 4 letters were mrsa ... hate those letters.We are dealing with our third outbreak in 4 weeks.I AM SO FRUSTRATED!!!
That picture is so cute. We do go to extremes to hold back the boredom in waiting rooms, don't we! :)

I wanted to comment on your comment on my blog. If that made sense, LOL. Thanks for the suggestion! Unfortunately, my Peanut is allergic to Lamictal. We ended up in the ER in November because of it. And we used Klonopin but it made her SOOO sleepy and she cried all day. It wasn't fun. :(

I wish there was a magic seizure drug that just worked for all kids!

Popular posts from this blog

And Sometimes Feeding Your Kiddo Looks Like This...

A simple sentence. No one said it to me in the beginning, but boy did that tube cause a lot of chaos. The NG tube graduated to the G-tube which morphed to a GJ- tube…. A brief history of Ivey's feeding tubes: *The NG tube was in place the first time I ever saw my daughter in the NICU.  My only memory of her without a feeding tube is them placing her in my arms immediately following her birth. *The G-tube, well, that is a story within itself.  That decision did not come lightly.  Another hole in her.  Another decision on our plate, but not really on our plate, it was apparent it was a medical necessity for her survival.  Literally to give her a chance to live.  A permanent decision.  A 5am panic attack in the Scottish Rite elevator that happened to coincide with Dr. Meyers arriving at the hospital at the same time as me.... Our intersection in the elevator set the stage for the years to follow. From that point on, he knew I was a little nuts and a lot...

BEAUTIFUL GREEN EYES........

Sibling Secret Sauce

Siblings of kiddos with disabilities are amazing humans walking amongst us. They live a life, most often, in the shadows of their sibling who simply needs "more". More time. More direct attention. More of more. We have now come to a fork in our road. Our boys are young men, and, our daughter is a young lady. I'll be honest, I was uncertain what life would look like once the boys left this home, once they had their own time, in their own personal sunshine. We found out quickly once Knox left for college his freshman year what that would look like. And then, when Walker left, we knew what life would feel like in their absence. There was too much space. Ivey felt it. We get many compliments about the relationship the boys and Ivey have with one another. Hints here and there that, maybe, Matt and I had some secret recipe to parenting a household with a child that is very medically complex and a very complex communicator. This is what I can tell you - there is no re...