The Past 7 Days Away

....have been very busy.

A small recap:
Spent last weekend with Tasha and Mandy having a girls' trip to the spa....left behind 9 babies all under 5 and 3 great husbands....During the week there was two trips to Scottish Rite, one trip to pediatrician, and one broken arm (Knox's).

Ivey's Info:
Neurologist loved seeing her nibble her fingers, rub a conformer from her eye, coo at us and finally show her temper. Her orthodontist says we are still on track for her first surgery on her mouth. Ivey weighed in at 9.17 pounds and her apnea monitor was discontinued. She's getting to be a big girl.

After a great weekend at a spa.....this has been a tough week. Sometimes I just don't know how I will get through it, but then Angels appear all around. Thank you mom and dad, Traci, Tasha, Mandy, Cammie, Lowery, Charlie, Beth C., Beth S, Dana, G & G Gang, Heather and Nicki.

Our phone has been transferred to the new house; however, we are still in the old house. So, call us on the cell phones.
Gwen

Comments

And Sometimes Feeding Your Kiddo Looks Like This...

A simple sentence. No one said it to me in the beginning, but boy did that tube cause a lot of chaos. The NG tube graduated to the G-tube which morphed to a GJ- tube…. A brief history of Ivey's feeding tubes: *The NG tube was in place the first time I ever saw my daughter in the NICU. My only memory of her without a feeding tube is them placing her in my arms immediately following her birth. *The G-tube, well, that is a story within itself. That decision did not come lightly. Another hole in her. Another decision on our plate, but not really on our plate, it was apparent it was a medical necessity for her survival. Literally to give her a chance to live. A permanent decision. A 5am panic attack in the Scottish Rite elevator that happened to coincide with Dr. Meyers arriving at the hospital at the same time as me.... Our intersection in the elevator set the stage for the years to follow. From that point on, he knew I was a little nuts and a lot...

BEAUTIFUL GREEN EYES........

Sibling Secret Sauce

Siblings of kiddos with disabilities are amazing humans walking amongst us. They live a life, most often, in the shadows of their sibling who simply needs "more". More time. More direct attention. More of more. We have now come to a fork in our road. Our boys are young men, and, our daughter is a young lady. I'll be honest, I was uncertain what life would look like once the boys left this home, once they had their own time, in their own personal sunshine. We found out quickly once Knox left for college his freshman year what that would look like. And then, when Walker left, we knew what life would feel like in their absence. There was too much space. Ivey felt it. We get many compliments about the relationship the boys and Ivey have with one another. Hints here and there that, maybe, Matt and I had some secret recipe to parenting a household with a child that is very medically complex and a very complex communicator. This is what I can tell you - there is no re...

For the Love of Ivey

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