Confessions from the mind of this sleep deprived mom navigating the world of complex medical needs, deafblindness, and special education. And y'all, it may not always be pretty, but it's real, and it's always for the love of Ivey.
The Sweetest Humble Pie Ever
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Ivey fussing with Ms. Ashley
The fruits of humble pie Refusing to have her picture made. Determined to get her hearing aid out. Two tasks accomplished. I forgot to rotate the picture. oops.
Oh,Ivey .... you sweet little love.Welcome to the world of preschool.You will thrive,you will flourish,you will blossom.You for certain will teach them just as much, if not more, then they will ever be able teach you!
I love it!! Thank you for sharing the story. I haven't checked in to read in quite a while, and I loved the update. I am so proud of her and for y'all. what an accomplishment and blessing!! Thank you Lord for making the desires of our heart come true. I know you are so grateful. Wendy
Thank you all so much for taking time to share this milestone with our family. It is so great that you all are a part of our lives just as Ivey is a part of yours. And yes, I will give our reason for going with green. As soon as I get all of the pictures downloaded I will post more. There are only 300 or so to choose from! If you haven't left Ivey a comment, please do. Someday when she is older she will marvel at the love and prayer that surrounds her - in all the moments of her life. gwen
A simple sentence. No one said it to me in the beginning, but boy did that tube cause a lot of chaos. The NG tube graduated to the G-tube which morphed to a GJ- tube…. A brief history of Ivey's feeding tubes: *The NG tube was in place the first time I ever saw my daughter in the NICU. My only memory of her without a feeding tube is them placing her in my arms immediately following her birth. *The G-tube, well, that is a story within itself. That decision did not come lightly. Another hole in her. Another decision on our plate, but not really on our plate, it was apparent it was a medical necessity for her survival. Literally to give her a chance to live. A permanent decision. A 5am panic attack in the Scottish Rite elevator that happened to coincide with Dr. Meyers arriving at the hospital at the same time as me.... Our intersection in the elevator set the stage for the years to follow. From that point on, he knew I was a little nuts and a lot...
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Wendy