Confessions from the mind of this sleep deprived mom navigating the world of complex medical needs, deafblindness, and special education. And y'all, it may not always be pretty, but it's real, and it's always for the love of Ivey.
9.03.2007
ivey's new stander
Whenever you hear us talk about Ivey's passy, we are talking about the purple thing you see one her trach. {When I first saw her passy I wondered why on Earth they made it purple so that it stood out so much. What you won't see here is her coughing it off and it shooting across the room like a bullet. It's purple so that it can be found easily.} Her passy is a one-way valve that allows her to breathe in through the trach, but push the air up and over her vocal cords, thus allowing her to speak (or make lots of noise in her case). Ivey has been pracitcing with her passy for a while. She has been working up to longer and longer intervals with it. The passy does make her cough, which is normal.
Ivey also has new conformers and they are much larger than her last pair. This pair finally 'flipped' her right lid out. Now her lashes on her right eye are out and not folded under the lid. She has really long lashes!!
We are going to miss you Rebecca! Thank you for arranging everything with Maddie's parents. You are one incredible PT! We'll see you in a couple of weeks and then again in a year and a half.
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