That's the best I can think of ..... surviving has side effects . If we sat down and evaluated the days, nights, weeks, months and now years, we most definitely have survived. It makes me feel like running around like Gloria Gaynor singing "I Will Survive". (On occasion - I have.) And I surmise that looking in from the outside, we've done a fictitiously superb job ... of surviving. But that's where things get a little gray and sketchy. We have survived, which dang sure impresses most people. If fact even I am impressed. I look back on some days and wonder how in the world did we ever get through that.....yet here we are as proof. We survived. We, when in the company of our sweet girl, can appear somewhat intimidating. Seriously, how many moms do you know who can monitor a seizure, vent a g-tube, administer Diastat, manipulate a feeding pump, call a neurologists, orchestrate two elementary age boys and not l...
Confessions from the mind of this sleep deprived mom navigating the world of complex medical needs, deafblindness, and special education. And y'all, it may not always be pretty, but it's real, and it's always for the love of Ivey.