Confessions from the mind of this sleep deprived mom navigating the world of Deafblindness, complex medical needs, and complex communication. And y'all, it may not always be pretty, but it's real, and it's always for the love of Ivey.
Perfect.Now I can see their precious faces AND hear their precious voices .again!
Jessica Chamness said…
What a great video! I just thought I'd share with you that while I was listening to the video, Jacob started participating in Ivey and Ava's conversation. Apparently they were speaking his language! He's still "talking" to them as I'm typing this! Hope you and your family are doing well.
A simple sentence. No one said it to me in the beginning, but boy did that tube cause a lot of chaos. The NG tube graduated to the G-tube which morphed to a GJ- tube…. A brief history of Ivey's feeding tubes: *The NG tube was in place the first time I ever saw my daughter in the NICU. My only memory of her without a feeding tube is them placing her in my arms immediately following her birth. *The G-tube, well, that is a story within itself. That decision did not come lightly. Another hole in her. Another decision on our plate, but not really on our plate, it was apparent it was a medical necessity for her survival. Literally to give her a chance to live. A permanent decision. A 5am panic attack in the Scottish Rite elevator that happened to coincide with Dr. Meyers arriving at the hospital at the same time as me.... Our intersection in the elevator set the stage for the years to follow. From that point on, he knew I was a little nuts and a lot...
Today is the specialist of days. Today she turned two and at 5:30am her daddy and I were sing Happy Birthday! I will put all Birthday messages in her book, so even if you have never left her a message, now is the time! H.a.p.p.y. .B.i.r.t.h.d.a.y. .t.o. .y.a.,. .h.a.p.p.y. .b.i.r.r.r.r.t.h.d.a.y.!!!!
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