Our little trooper made it through another surgery with great news. Her left eyelid has now been repositioned. It has a tiny bit of swelling and bruising. Her surgeon decided not to tweak her nose; that will come in a few years.
Ivey's bronch came back with great news. The restriction in her airway has improved. Her ENT sees no need for reconstructive surgery at this point. He has given the okay to start the process for removing the trach, which will take months. The next step in this process will be a visit to her pulmonologist.
Ivey's ENT also replaced the tubes in her ears. An ABR hearing screen was preformed. This test confirmed much of what we already know. Ivey has hearing loss and she tends to hear higher pitch than lower pitch. One ear has a pretty significant loss. The other had fluid behind it, so we will wait for 6 to 8 weeks and perform another hearing test. This will allow swelling to go down and get a more accurate reading. We do know that there is hearing loss in both ears and Ivey will need hearing aides in one or both ears.
After Ivey returned to the room from recovery she fussed for a few minutes, but within no time she was smiling again and has been since then. She has spent her day (Saturday) playing with her brothers. She is as happy as a lark and all she wants to do is play patty-cake over and over and over. Right now she is snuggled up and sleeping like an angel in her daddy's lap.
Confessions from the mind of this sleep deprived mom navigating the world of complex medical needs, deafblindness, and special education. And y'all, it may not always be pretty, but it's real, and it's always for the love of Ivey.
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11 comments:
I'm glad things went so well yesterday, and sounds like you got some great news along the way too. I love it when our little ones bounce back from such major issues. :) Sleep well!
That is such great new's!
Ivey is AMAZING!! Playing Patty cake is lot's of fun..
I bet she has you all playing it very well now! LOL..
I hope she will be going home very soon.
Brightest Blessings to ALL...
So thankful to hear that it went well and the prospect of the trach removal is so exciting!!!!
Yeah Ivey! So glad to hear you are doing well. We think of you and your family often. Wish you were closer cause you and Gavi would be great friends!
I don't know much about lots of the stuff you deal with. But I know hearing aids. 4 of my 8 children wear them. Two got them at 3, one got them at 18 months, and one got them at about 6 months. Now those kids are
22, 17, 15 and 7. Hearing aids help, lots. I see faces light up when hearing aids go in. They are wonderful. What a sweet-heart Ivey is. I bet you will love it when she starts to hear better and communicate more easily.
So glad to hear!
Lovely to hear Ivey is doing well!
She is a trooper! :)
Ya'll are amazing! So glad things went so well. Do yu guys need anything here?
So glad to hear all went well. Way to go Ivey!
Wonderful news!! Way to go Ivey!
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