Let's Catch Up and then VOTE for Emma

Ivey is a busy bee these days. Last week she visited her ocularist and now has her new conformers. It looks like she is sticking to schedule. All things keep on track, and little miss magic will have one more set of conformers and then…..her first set of prosthetics. So before I say this, keep in mind we have developed an odd since of humor these days. There are times we either laugh or cry. Ivey’s eyes have become a subject of laughing more than crying.

So, the big debate right now is…..what color should Ivey’s eyes be? In the great big debate of babies and wondering what color their eyes will be; well, we get to choose. And since Knox and Walker do not have the same color of eyes, we can’t make up our minds. We still have a few months, so plenty of time to figure that one out.

Also, Ivey has become a little trickster when it comes to her conformers. She pops them out constantly. Where I can hardly take them out without concentration, she pokes her index finger in there and out it comes. She is sneaky about it too. She does it when you glance away or she moves her hand up to her eye very slowly; it is almost like she is pretending to sleep. Pop…it’s out. Considering that the conformers are clear, finding them can be an interesting. If someone offers to pick it up off the ground, they never quite know how or if they should touch it. It is comical to watch.

Looking forward, asking someone to pick an eye up is going to be a hoot. Better yet, imagine coming to our door and over hearing us ask the boys which one has Ivey’s eye. I can’t help but giggle just thinking about it. Lord can only imagine one of our friends’ children carry her eyes around during play dates……

Monday I also spoke with Ivey’s geneticist. She called to check on Ivey, but also had great news about research on chromosome 21 deletion. That in itself is another post for a different day. Good exciting news though.

Let’s see… This Friday Ivey will have her G-J tube changed out for a new one. That requires a trip to radiology at Scottish Rite. It is a procedure that takes minutes.

Ivey has also started swaying. It’s that side to side swaying like Ray Charles. She can shake a tailfeather--definately. Just part of her blind world. She also tries to throw herself backward when you hold her or she is sitting. If you happen to be holding her and she does this, don’t let her. It seems like such fun to play with her and let her go backward, but we have to discourage it. Ivey will have a hard time sitting on her own if we encourage it. As we all know, bad habits are hard to break. Group effort here.

Well, seems I have rambled enough. Have a GREAT day.

gwen

ps. Thanks Miranda and Sarah for taking Ivey to the ocularist for me. It was a regular visit for Ivey, but a big step for momma bear to let her go.

IF YOU ARE STILL WITH ME....GO TO EMMA'S BLOG AND VOTE (bacia)!!!!!!! REMEMBER EMMA HAS BILATERAL ANOPHTHALMIA TOO....THIS WOULD BE INCREDIBLE FOR HER!!!!!!