Confessions from the mind of this sleep deprived mom navigating the world of complex medical needs, deafblindness, and special education. And y'all, it may not always be pretty, but it's real, and it's always for the love of Ivey.
A VERY Happy Birthday to my Birthday buddy!!! I pray you have a fun filled day enjoying your beautiful family who love you! I am sure they will give you plenty of kisses and loving!!! God loves you! Sending Birthday wishes and LOVE your way....from another "elizabeth" :) IN HIS LOVE, Liz p.s. I have thought of you all day so far, since we are both celebrating our special days.... :)
H A P P Y B I R T H D A Y Sweet Baby Girl!!! You are such a special blessing and I'm glad I got the chance to "know" you this year! My prayer for your birthday is that you get all the happiness you have brought your family and the world!! :)
I thought about y'all all day today and hoped it has been a wonderful, happy happy day! What a precious thing she is--we are blessed to get to be part of her story, even if it is only through Addison and email! Hug your sweet girl for us--I wish we could come celebrate with you Sunday! We'll be celebrating here, for you!
Hey I found your blog on here and I've started to do friendship friday with the mister linky... i dunno if you're interested but it sure sounds like you would have a lot of great things to offer!
Also, HAPPY B-DAY IVEY!!! I've been meaning to post that for a couple of days but I've been busy with house guests!
A simple sentence. No one said it to me in the beginning, but boy did that tube cause a lot of chaos. The NG tube graduated to the G-tube which morphed to a GJ- tube…. A brief history of Ivey's feeding tubes: *The NG tube was in place the first time I ever saw my daughter in the NICU. My only memory of her without a feeding tube is them placing her in my arms immediately following her birth. *The G-tube, well, that is a story within itself. That decision did not come lightly. Another hole in her. Another decision on our plate, but not really on our plate, it was apparent it was a medical necessity for her survival. Literally to give her a chance to live. A permanent decision. A 5am panic attack in the Scottish Rite elevator that happened to coincide with Dr. Meyers arriving at the hospital at the same time as me.... Our intersection in the elevator set the stage for the years to follow. From that point on, he knew I was a little nuts and a lot...
Siblings of kiddos with disabilities are amazing humans walking amongst us. They live a life, most often, in the shadows of their sibling who simply needs "more". More time. More direct attention. More of more. We have now come to a fork in our road. Our boys are young men, and, our daughter is a young lady. I'll be honest, I was uncertain what life would look like once the boys left this home, once they had their own time, in their own personal sunshine. We found out quickly once Knox left for college his freshman year what that would look like. And then, when Walker left, we knew what life would feel like in their absence. There was too much space. Ivey felt it. We get many compliments about the relationship the boys and Ivey have with one another. Hints here and there that, maybe, Matt and I had some secret recipe to parenting a household with a child that is very medically complex and a very complex communicator. This is what I can tell you - there is no re...
Comments
Hope you have a fun day!
(what an adorable picture of her brothers loving on her:)
http://www.alinejacomo.blogspot.com
Aline
I pray you have a fun filled day enjoying your beautiful family who love you! I am sure they will give you plenty of kisses and loving!!!
God loves you!
Sending Birthday wishes and LOVE your way....from another "elizabeth" :)
IN HIS LOVE,
Liz
p.s. I have thought of you all day so far, since we are both celebrating our special days.... :)
=)
Your Aunt Connie
lady bug Hugs and butterfly kisses
Debbie
Also, HAPPY B-DAY IVEY!!! I've been meaning to post that for a couple of days but I've been busy with house guests!